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  • Anonymous
    Post count: 93172

    Dear Kathy, Thanks for your story, but I have to admit I’m scared of this weight gain once I get to hypo. I’m still hyper and I started into this mess over-weight. I just can’t gain more weight!! My eyes are driving me crazy, too…and my get up and go seems to have got up and left me, too…makes for depression, inertia and feeling like you’re even crazier than you know you are…the moody blues and crying jags kind of puts you in isolation with yourself…Boy, I really can get on the self-pity pot…but I’m also a fighter who still hopes to feel better soon!?? I imagine since our bodies are used to running on high amp, when we become hypo I bet exercise is the ticket…Now, how to get motivated to do these exercises…that’s another problem….You’re not alone. Hang in there and keep up the faith and hope and fighting spirit.
    Rachel

    Anonymous
    Post count: 93172

    Hi Julie,
    Just got your message. Yes I am hypoactive now and I have been for the past 19 years. I take elthyroxin, what you take is the same stuff only the generic form. I went very hypoactive about two years after my surgury and once I was put on elthyroxin I began to feel much better. However after a few years I gained a lot of weight and now I am about 50 pounds overweight. I am monitored by my doctor who says my blood levels are normal but I am soon going to demand that he send me to a specialist. I think that after a person has had a hyperactive thyroid for a period of time their body adjusts to being over active. I always feel best when my blood levels are at the highest level in the range of normal. When they are not there I feel sluggish. I guess moving around like you are makes it had to get it normalized. My problem is with me. I put off doing anything about it because it’s easier. I think this thyroid problem has changed my whole personality. Somethimes I feel like my ‘get up and go’ got up and left. From reading the other bulletins on the board i see that most of the people with it are tackling it head first. Makes me realize I have to get off my butt and do something about myself, especially my eyes. I think you may have to badger your doctor to spend more time on your illness. I have to do the same. One thing I can tell you is that the past 20 years of ignoring my illness, just taking elthyroxine has been the worst thing I could do. You need to demand answers and time from your doctor until you are happy with the way you feel. Best of luck. Stay in touch okay.
    Kathy

    Anonymous
    Post count: 93172

    I was wondering if the eye problems always occur? I was diagnosed a
    month ago with graves, my endo said I had a slight stare. What does
    that mean? She said I really didnt’ need to see an eye specialist
    right away but I did. I needed to know for myself where I was with
    this all. he said that my eyes are perfectly healthy and with the
    right care and stable levels I should have no problems. Is it possible
    that someone can have this disease without the eye problems also?

    Thanks
    Lisa

    Anonymous
    Post count: 93172

    Quite often people have the disease without the eye trouble Lisa, as well as people like me have the eye trouble without thyroid problems. He shouldn’t tell you that you won’t have eye trouble tho as the Opthalmopathy doesn’t seems to have any connection with the thyroid levels. You should keep aware of your eyes and get them checked if there is any change at all. Sometimes the eye doc can notice some change in eye pressure (glaucoma, usually temporary) when you look up with grave’s.

    Best, Bruce

    Anonymous
    Post count: 93172

    Hi Lisa, I see the Opthalmologist once a year now as my Endo told me that the eye complication *could* develop at any time. Having Graves’ does not mean you *will* have the eye complication though. There is this little measuring device that checks to see if your eyes are starting to bulge, and they also check the retina to make sure no pressure damage is beginning. I have had Graves’ since 1991 and the only eye problem I have is some dryness which is relieved by liqiud tears. Better to keep watch just to make sure, but do not worry that you will have to face the eye troubles as well.

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