Dear Pam, you sound like the voice of reason to me. It is so important
to talk to docs, get 2nd opinions etc. If you are going to get a
nonreversible treatment, you should know about it and be confident
regards it. I get the sense some people are not even told about
options or complications. My endo doesn’t like to do RAI if there is
eye involvement.
I am trying to create a data base on the self reported symptoms and
treatments of the BB. Anyone who will e mail me their facts with a
first name and initial, your locale, age the etc. would be appreciated.
What treatment, any eye probs? when etc. It has been an interesting project so far.
I am reading the old posts. Privacy will of course be honored. But maybe we can all learn something?
Jeannette
