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  • Anonymous
      Post count: 93172

      Congratulations on your son’s engagement! – or as they say in my culture Mazel Tov! :)

      I got my RAI done by a Nuclear MedTech too – but she was instructed and supervised carefully by a Radiologist who seemed to have some understanding of Graves. Personally, the less people who handle these radioactive materials – the better I feel!

        Post count: 93172

        A message from Nancy Patterson, National Graves’ Disease Foundation
        director and fellow Graves’ warrior:

        There is about to be a new rule proposed by the Nuclear Regulatory
        Commission (NRC) that would require that RAI only be given by
        radiologists or hospitals, and would no longer be given by licensed
        endocrinologists. Those endocrinologists who are already licensed to
        administer RAI would be “grandfathered in,” but no new licenses would
        be issued. Obviously, doctors are writing in asking them to reconsider,
        and letters from patients would also be very important. WE are the
        ones that use this service.

        As an example (a very sad one) of how this can be to our detriment,
        consider the case of a man, diagnosed with Graves’, for whom it took
        three more weeks to get additional scans and ultrasounds, and then
        three more weeks before the RAI could be administered because the
        radiologist was going away on vacation. He died in thyroid storm
        before his thyroid could be treated. Had his physician been licensed
        to administer RAI, he could have been treated, and in all likelihood,
        be alive and recovering.

        PLEASE take the time to cut and paste and mail letters to the four
        NRC commissioners listed below. The DEADLINE IS OCTOBER 15–less
        than four weeks away. Feel free to forward this message to other
        Graves’ warriors. Also, please let me know that you wrote, so I can
        give Dr. Jack Baskins (from AACE) an idea of the number of supportive
        letters that were sent from patients. THIS IS SOMETHING WE CAN DO–

        ~~~~~~~~~~~~~~~~ letter samples ~~~~~~~~~~~~~

        To: The Nuclear Regulatory Commission (NRC)
        From: (Name, Address, e-mail)
        Re: Revisions to 10 CFR Part 35 (Medical Uses of Byproduct Materials)

                I am a Graves’ disease patient, and as such, have had (or will
        have) Radioactive Iodine in the treatment of my illness. At the
        present time, I-131 can be given either in a hospital, or in the
        physician’s office. There are several advantages to having the
        endocrinologist licensed to give I-131 for Graves’ Disease in the
        office. These include: There is more personal, accurate, and focused
        attention between the patient and physician. There is less room for
        error in the physician’s office. It is cost effective to have office-
        administered I-131. The cost of hospital administration increases
        the cost of the procedure by two to three times. It reduces the
        fear and anxiety of this treatment to have it administered in the
        office. Based on NRC data, there is no documented misadministration
        of I-131 by endocrinologists.

                (Enter your personal experience here)

                Briefly, there are four points that are especially important to
        consider if endocrinologists are no longer licensed to administer
        I-131 in their offices:
        1. There is an increased potential for safety hazards and/or errors
        in the hospital.
        2. There is a large increase in the cost to the patient.
        3. There may be increased emotional trauma during treatment at the
        4. There is an increased layer of complexity and margin of error made
        by the necessity of multiple referrals.

                (Your personal experience here)

        Mail to:
        1. The Honorable Dr. Shirley Ann Jackson, Chairwoman
        Commissioner, Nuclear Regulatory Commission
        Room 17D1
        One White Flint North Building
        11555 Rockville Pike
        Rockville, MD 20852-2738

        The other Commissioners are at the same above address:
        2. The Honorable Edward McGaffigan, Jr. , Room 18G1
        3. The Honorable Greta Dicus, Room 18H1
        4. The Honorable Nills J. Diaz, Room 18F1

          Post count: 93172

          I am back!! I am glad to see the BB back, too! Thanks for keeping me posted via email!

          My experience with RAI was at the hospital. The radiologist, endocrinologist, and nuclear medicine technologist were involved from the start to the end (uptake, scan, and treatment). If there is a problem, the endo goes one floor above the Radiology/Nucleaur Medicine Department for consultation with a more experienced endo to make sure. Hope it helps.

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