-
AuthorPosts
-
I have to say, my doctor is awesome, and not considered a Endo “specialist” doc. When he took my blood after 2 weeks of taking RAI, he just knew my levels were coming down because of my symptoms. So he took me off the beta blockers and told me if my palpataions come back, to take it as needed. His last comment was, “…and some specialists wait for at least 4-6 weeks after RAI to check levels.” He said he just doesn’t believe in that. Every person reacts differently to RAI. There was another patient that was “burned” when I did, and that patient was already on Synthyroid! I was jealous, but knew it wasn’t my time yet. We all need to hang in there. I’ve only been suffering for a year. I can’t imagine feeling this way as long as some people have. My heart goes out to all of you.
Yes, my doctor told me that the medicine has a ton of side effects, from tiredness to liver failure. Since the side effects of RAI are: sore throat/horseness (which I’ve had a sore throat/neck now for 2 weeks), and a possibly of a thyroid storm, I opted for the RAI.
My TSH started out, and continues to be <.015 (still below normal)
My T4 level started out at 2.69 and is now 1.29 (currently normal)With me, personally, I have to say it’s because my T4 was so high, that’s why I’ve been feeling horrible. My main symptoms were sweating, tiredness, heart palpatations/increased heart rate, weight gain – which I thought was strange but my doc told me it happens with people that are hyperthyroid. When my heart rate increased even more, right before the RAI, I lost 10lbs. in 9 days.
My girlfriend, who has had Grave’s for over 10 years now, AND my doctor, told me to listen to my body. Don’t go off the blood work. They both told me that even though my levels may show “normal”, I still may not feel right. My doctor told me, he can get me to where I feel my best. He just told me he needs time to regulate me. I still have heart palpatations at least once a day, usually when I’m doing something physical. When I check my heart rate, it’s in the 70’s, when I was on the beta blockers, I was lucky to get it to 60. My heart rate was at 104, resting, prior to RAI. The best part is my energy. It’s increased tons and I’m getting back to my smiley self. If you can do the RAI, do it. Even my girlfriend had it done years ago. She said it was the best thing she could have done. She was also on medicine prior to the RAI, and wished she would have tried the RAI first.
I feel that I really do regret my decision for surgery as I seriously feel much worse than I ever did being on PTU. I was told that I couldn’t be on PTU forever and needed to make a decision as it can cause liver damage. How do you know if you’re T3 or T4 are the cause of feely crappy and hypo? My levels are in the normal range although the T4 is on the high end of normal.
Carla
-
AuthorPosts
- You must be logged in to reply to this topic.