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  • Anonymous
      Post count: 93172

      I remember the summer after I had RAI, I experienced muscle spasms like charlie horses in my legs mainly but it didn’t last. I had a weird experience in my swimming pool that if I got into water under 80 degree I would go into a full body charlie horse. The year after that though, I didn’t? It was weird. I may not be much help but it sounds like what I had to a point. Hope you get an answer elsewhere too.

      Anonymous
        Post count: 93172

        Hi All,
        I just wanted to say thanks to everyone who posts, and to our wonderful facillitators who are such a life line. To our newcomers, these are the two most important things I’ve learned in the last two years since RAI: Take super good care of yourself. Treat yourself as you would a beloved friend. Pushing yourself too hard only delays the recovery process. Also, it’s amazing how healing doing something relaxing is. I’ve started reading books again, and it’s so restorative! Loved the post about humorous TV. This would have been less of an ordeal if I had given up a few chores and soaked in the tub nore often. AND- pay attention to your symptoms, write them down. MY doctor discounted my trouble sleeping, though my levels have been off, either too high or too low, for the past two years. If I had felt better I would have driven an hour to another doctor in the city, but at the time it was too much. So I’ve had to push this doctor to take this seriously, and finally, after another dose change, am able to sleep. It feels really, really good. So, newcomers, hang in there. This too shall pass. It will. Thinking of you all.

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