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  • Anonymous
      Post count: 93172

      I was really glad to read the message from Lisa’a mom. One of the big problems
      we run across is support of family members and friends. The NGDF encourages
      spouses, friends and loved ones to come to our support group meetings if we
      have one in your area. If we don’t get on the once a month CHAT with your
      family by your side. Let them ask questions or just read what goes on. Education
      is the key! I have spouses come to my support group meetings and they have
      said after a meeting or two that they thought their spouse was faking it or it
      was all in their head. It has made life easier for them and it can be easier for
      you too. We also have and informal Chat every Sunday and this last week CincyKid
      and his wife were on line togather and it was good to talk to them both.

      Try printing up some of the messages that really hit home to you and the responses
      and if other folks are having the same problems. It will help show you are not
      the only one and it is a part of what is going on in your life.

      on-line facilitator

        Post count: 93172

        Jake, thanks for the comments about family support. When Lisa was going
        through her worst times she told me constantly that I didn’t understand
        how she was feeling. I understand the truth that you can never know exactly
        what another person is living through but you can be supportive by just
        being there. Many nights when she couldn’t sleep and emotions were
        running high we would jump in the car and go for a ride. She later told me
        that she never could have made it without our support. My husband is a
        type I diabetic so I am in the full-time support business! The thing is
        that we supporters need support too. It can be very difficult to watch
        the people you love cope with illness. You are facing this from both
        sides and I’ll keep you in my prayers.

        Lisa’s Mom

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