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  • Anonymous
    Post count: 93172

    Yes, I’ve been having itchiness all over my body, usually when I
    lay down,sometines when I sit. When I lay down my head and neck itch
    mostly. Friday night my husband and I went to a movie. Five minutes
    into the movie I started itching so badly that I had to leave and
    stand in the back of the theater till the movie, which was very good,
    finished. I’m losing a lot of hair also. I may have to have another
    dosage of the radioactive iodine. I’m having a scan done on Thursday.
    My last two blood tests showed my levels were very high. I was told to
    discontinue my synthroid two weeks ago.

    This itchines does drive me crazy!!

    Carmen

    Anonymous
    Post count: 93172

    Besides having to start dealing with eye problems, I’m tired of losing my hair. It’s getting really thin. I’ve been losing hair ever since I zapped my thyroid about 6 years ago, even though my levels are supposedly OK. I’m on .125 mg synthroid. Can anything stop this? Should I up my dosage. Has anyone had this happen long term like this??

    Anonymous
    Post count: 93172

    Yes, I have this problem too, It is diffuse hair loss over the entire
    top of head. I used to get this when my replacement dosages were not
    high enough or when I was on synthroid, but now am getting it all the
    time. No relief in sight. I had a hysterectomy 2 yrs ago and it has
    not been worse on estrogen replacemtn therapy but also is not better.
    I am waiting to start losing what little is left since I just adjusted
    my Armour thyroid dose downward so I could stop insomnia problems. So
    far haven’t noticed an increase in hair loss, but I am expecting one.

    If you hear of any remedy, let me know as I have little hair left and
    intend to live a lot longer. Hopefully with something left on top.
    None of the other thyroid patients in my family have this problem. They
    think It’s funny. Not their problem so not sympathetic. I’m sick of
    being sick! :-(8 <=====Smiley with goiter

    Anonymous
    Post count: 93172

    Joan,Did you switch to Armour to help hair loss? I haven’t talked to my Doc, but think I should either up my dosage of synthroid (now on .125 mg), or go to Armour? Any feedback?

    Anonymous
    Post count: 93172

    CARMEN,
    I AM NEW TO THE INTERNET AND GD BULLETIN BOARD. AS I WAS READING OLD
    MESSAGES, I CAME ACROSS YOURS. I ALSO AM ITCHING BUT NOT AS BAD AS I WAS
    WHEN I WAS FIRST DIAGNOSED IN ’91. BACK THEN I WOULD TAKE A COOL SHOWER
    AND WRAP MYSELF TIGHTLY IN A SHEET. YOU SAID YOUR LEVELS WERE HIGH AND
    YOU WERE ADVISED TO STOP YOUR SYNTHROID. DID THIS HELP? MY TSH LAST
    WEEK WAS 7.1 AND THE DOC INCREASED MY SYNTHROID. MY ENDO DIED LAST
    YEAR SO I AM PRESENTLY SEEING AN INTERNIST.HOPE YOUR ITCHING IS BETTER.
    WOULD LOVE TO HEAR FROM YOU. HOPE THIS MESSAGE IS CLEAR, HAVING PROBLEMS
    TYPING TODAY.

    THANKS, KITTY

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