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  • Anonymous
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    Post count: 93172

    Hi –

    I think that’s a good point to make. Not wanting taking away Monique’s joy either, but I was on Tapazole for a year and was off all meds for a full year before starting to show symptoms again. I’m “sort of” in remission now, with thyroid hormone levels in “normal” range, but TSH still slowly coming back up. Feeling OK, but I don’t think this remission will last forever either. But it does happen to some. Hopefully for you, Monique, it will last forever, but it’s good advice to watch your symptoms and to get checked periodically.

    Good luck!
    SarahC

    Anonymous
    Participant
    Post count: 93172

    Thanks for that post Jake. I’m not trying to bring anyone down but I went into remission too…twice. I hope your remission last but mine was only a year and then 9 months. Please continue to get your levels tested. It’s important!

    God Bless

    Anonymous
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    Post count: 93172

    PTU only for “older” folks?!?

    I started PTU shortly after diagnosis in March, 2000, at the ripe old age of 47 .

    In my case, my endo started to prescribe Tapazole, saying it would be “easier” to keep track of taking the pills, as it is a timed-release formulation, so only one pill a day is usually needed.

    I informed her that I have a personal history of being hypersensitive to most medications, and she immediately shifted back to PTU. Since it (PTU) comes in tablets with a relatively short life span, and low dose per tablet, she judged it would be easier to adjust dosages as required, without a trip to the pharmacy for a bottle of different tablets. Naturally, the high dosage I was prescribed early in treatment required many tablets throughout the day, but the ease in changing prescribed dosage as my requirements have changed has been worth it.

    Anonymous
    Participant
    Post count: 93172

    Ok guys. I have been suitably hammered for using the word cured. But that was the one my endo used, so I did as well. I’ve been in remission before and know the difference. This is definitely different but I won’t go into details. I will continue to get my annual TSH and Free T4’s just to be sure. Now of course, I get to try and figure out how to lose the weight that I’ve gained since my metabolism slowed. It’s strange to be chubby and not able to just drop the weight at will. I guess I’m going to become a regular user of my treadmill. Any suggestions? I heard both good and bad about soy. I used to be a vegetarian and I’ve been told that wasn’t good for my thyroid. Others say it is fine. Any ideas?

    Anonymous
    Participant
    Post count: 93172

    I you’re cured then you’ve never had Graves’ Disease but “only” hyperthyroizme I think.
    Annelise

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