Hi Elizabeth,
Welcome to the Graves’ Disease Bulletin Board. I wanted you to
know that I did read your post. Things don’t sound like they are
going so good for you right now. All the things that you said in
your post I would mention to the doctor when you go back in. I
mean everything including how you do need a support system right
now. You are not well and have the children to care for too.
Since you seem to be on your own with these symptoms now I would
even take daily notes on how you are doing. Gosh, when I had the
shakes bad I don’t think I could have taken any notes.
I was blessed that my husband took over everything when I was
not well. Heck, we didn’t even realize how sick I was though
until I went to the doctor because of my heart skipping.
I hope the doctor is able to set you up with some type of support.
Even for me now with my Fibromyalgia (another autoimmune problem)
the nurse said I can call her about anything.
I wish you a speedy recovery and pray your doctor can address
all your symptoms. Since your eyes are already effected I would
also ask him if he knows about the treatments currently used so
as to prevent more eye problems.
Good Luck,
Michele B.