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  • Anonymous
      Post count: 93172

      Glad to hear you are doing better. I also had minor flu like symptoms and told my wife that I thought maybe I was coming down with something, so most lilkely it was just the RAI treatment. I am feeling better today. In the long run I know this will have been worth it. Good luck in the day ahead. Gary

      Anonymous
        Post count: 93172

        okay, I guess it is no turning back now, I have RAI this afternoon. I am a little bit nervous but know that it is the best decision for me. Wish me luck…

        Anonymous
          Post count: 93172

          Best of luck to you Jenn!

          You’ll be fine!

          Anonymous
            Post count: 93172

            Dear Jenn,
            You will do GREAT ! You are on your way to feeling better.
            Brynne

            Anonymous
              Post count: 93172

              Hey..I am post RAI by about 6 weeks now & just went for my second set of bloodwork..all my levels are in the normal range..Praise God! You are going to do more than fine & you are on the way to feeling better & being much more healthy..blessings, Cathy

              Anonymous
                Post count: 93172

                Thank you everyone for the well wishes. Everything went fine. I felt a bit sick to my stomach last night, headache…but I wasn’t feeling well before the RAI so not sure if it had to do with the RAI or not feeling well in general. I woke up this morning feel great, a very slight sore throat but that is it. We will see how it works for me. I just hope I don’t gain a bunch of weight!

                Anonymous
                  Post count: 93172

                  Also had my RAI yesterday. Just like you I felt a bit sick last night and have a sore throat today. I wish you the best of luck.

                  Anonymous
                    Post count: 93172

                    Hi Jenn,
                    I am glad you had a chance to let us know that all went well. You will probably have better sleep than you did prior to RAI treatment. I think the anticipation of RAI is the most difficult part. Continue to keep us posted.
                    Brynne

                    Anonymous
                      Post count: 93172

                      Welp, that part is over! No-one showed up covered in a suit to hand me a pill. Matter of fact, there were 2 of them and they both made sure I understood the procedure and the precautions to take at home. Really no big deal at all. When I left the hospital I did not spend a lot of time trying to find something to do, so I came home, ate and laid down and watched movies. By 6:00pm I felt really tired so I went to sleep for 2 hours. Woke up with a slight headache, ate again, drinking plenty of water with lemons and just basically taking it easy. I’ve been experiencing the muscle achiness for a few days, slight nausea and very, very fatigue, so I guess I will be ready if my body crashes from the RAI cause I already feel bad, BUT……I continue to pray that this ordeal does not defeat me and that I can move forward. I am looking forward to going out to run some errands tomorrow for a little bit then it’s back home to rest. Although I miss my son terribly, it’s nice to be able to rest quietly. Oh, by the way, my Endo said that I could start back taking my PTU a week after RAI. Anyone else told that from their Endo? I will post again to let you know how I am doing…..good, bad or indifferent.

                      Anonymous
                        Post count: 93172

                        I am glad all went well with your Rai treatment. you asked if anyone was kept on medication after Rai. I was on methimazole before Rai, did not take it for few days before Rai, but did take it for a few short weeks afterwards. I was told this was because after the radioactive pill it still took a few weeks for thyroid to burn out, and medicine would keep tyhroid levels down to closer to normal. I am now off that medicine, and taking thyroid replacement medication and doing well. In time you should start to feel better, it just will take time. Good luck and take care. rugdog

                        Anonymous
                          Post count: 93172

                          Actually, my endo told me to start taking PTU again when I was 5 days post RAI. I thought that was great! It would relieve a lot of the symptoms coming down. Then I started thinking about it and wondered how they would get an accurate blood test if I was on PTU. So I called my endo to ask him and was told that he never told me to start taking PTU again and that I shouldn’t. This is the same endo whose nurse told me to stop taking my beta blocker ten days before the RAI. And when my heart starting beating out of my chest and I blew up like the Stay Puff Marshamallow man they told me they never said that. I know I have been a little flighty these past few months but I’m not pulling this stuff out of thin air.

                          If anyone else has been put back on PTU post RAI I would also like to know.

                          Carys

                          Anonymous
                            Post count: 93172

                            Wow…..they actually told you to stop the beta blocker??? I specifically remember the day when I discussed with my Endo that I was ready for RAI and she explained the procedure and stated that I would go back on the PTU. She did not say for how long, plus, yesterday when I left the hospital, I called her office to reconfirm that she in fact wants me to take the PTU and she said yes, the same dose I was on pre-RAI which was 200mg.
                            I have marked this on my white board in my room so that I won’t forget and will probably call back next week just before I take it to confirm again.

                            Anonymous
                              Post count: 93172

                              Hi! I’m so glad that you are doing okay and you went through it. I pray that you’ll recover soon. Thanks for being there. Please stay in touch. I’d like to hear how you’re doing. Good luck to you.

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