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  • Anonymous
      Post count: 93172

      I’m sorry to hear your spouse gives you no support or encouragement when you are going through something so emotional and tiring. When I went hypo I felt like someone pulled a plug and drained every last ounce of energy, brain cells, etc. from my body. I sympathize with you and pray you feel better soon and pray your husband can educate himself on Graves Disease and what it does to you. God bless you!

      Betsy

      Anonymous
        Post count: 93172

        hi…

        thanks…..yes ..you are lucky…..I have tried to explain to mine….and it like in one ear and out the other……hope you are doing ok….now…..

        Sarah

        Anonymous
          Post count: 93172

          I have been on PTU 100mg 3 times a day for over a month now. In the past week, I have been extremely cold and really tired. I think I am taking too much. I have tried to get a hold of my Endocrinologist for the past four days with no return call. I finally this morning spoke to my regular doctor and she is going to send me in for labs. I just found out I have Graves disease and started seeing this Endocrinologist. I was not very fond of her from the start, but specialists are usually bland so I just figured that was the way it would be. Are there any resources to check about the doctor before you see them. I am DEFINITELY changing doctors, now I just have to find one. I live in the Baltimore Maryland area. Any help would be much appreciated.

          Thanks

          Tanya

          Anonymous
            Post count: 93172

            I would recommend that you consider telling the endocrinologist about the problem you had contacting her. It might not be her fault. Sometimes office staff is over-zealous in “protecting the doctor”. (Yes, I have actually heard that phrase used.) The initial dose of an antithyroid drug is a guess, and it is not necessarily the doctor’s fault if they over- or under-shoot the mark at first. And, even if it IS the doctor’s fault for not calling you back, at least if you change doctors after the conversation, the doctor will understand why (and hopefully change her manner of running things.)

            Hoping you are feeling better soon,
            Bobbi — NGDF Online FAcilitator

            Anonymous
              Post count: 93172

              I can relate. I had the same problem and it was the doc’s assistant who dropped the ball. But the doctor was also at fault because she was in “teaching” mode at a medical center and did not check her messages until 10:00 pm each night. I finally had to go to ER and they reached her – of course, it was 11:30 at night! (there is justice) And, I did need Synthroid. So, I hope you will continue to be diligent and do not accept unacceptable treatment by the medical profession. You were looking for a good doctor when that one came along – so, go with who you trust! Hope you feel better soon (it’s been 3 years, and I am finally feeling more normal). Joy in NoGA mtns.

              Anonymous
                Post count: 93172

                Hi Tanya,

                I been to too many endo doctors who were terrible. I finally found a internalist who is very up on Graves disease and it very good to listening to my needs. So, I go to him instead of a endo and have been very happy finally with my care and progress. Keep going to new doctors until you feel very comformaable with him/her. This is going to be a life long relationship and you need a good partner.

                It does get better,

                Bridget

                Anonymous
                  Post count: 93172

                  not all endos/specialists are bland! a good doctor communicates with patients/answers questions, reassures, and makes the patient feel comfortable. God knows, anyone suffering from graves needs a bit of tlc, as well as a prescription. my endo is caring, reasuring, tells me to call with any ? and he’ll get back to me within the day.

                  Anonymous
                    Post count: 93172

                    It’s sad to hear how many of you have trouble reaching your endo’s. I agree with Bobbi that it may not be SOME of their fault. I went to one who took a wait and see approach but after months never called me back so I found another. He was so busy I had a 3 month wait for my 1st visit. I told the nurse (didn’t talk with him yet) that with my labs so high did she think it was safe to wait? She said she’d put my chart on his desk & if I needed to come in sooner they’d call. No call so I waitd & went at 3 months. When I saw him he scolded me, “Why did you wait 3 months with levels this high!” He never saw my chart. Keep after them you must fight for your health!!! Hugs

                    Anonymous
                      Post count: 93172

                      Thanks everyone for the response. The Endo finally called me back. She sent me in for blood and lowered my PTU. She said she was busy and 4 days was not that long. I have a problem with that. I have contact another Endo, recommended by a friend, and he has agreed to review my case and maybe take me on. My problem now is getting my records from my current Endo. The secretary is rude and SLOOOOOOWWWWW. Hopefully this week I can get this resolved. BTW, I am already feeling better with the lower doses. I am not sooo tired and not cold anymore.

                      Wish me luck!!

                      Tanya

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