[Anonymous January 23, 1997 at 8:30 pm Post count: 93172]

#1165470

Karen, about 90% of the Graves’ disease people are easily treated and managed by the procedures. Many of the ones you read here are us other 10%

Bruce

[Anonymous January 23, 1997 at 10:47 pm Post count: 93172]

#1165471

Karen, I have had 2 doses of RAI (high doses) and am still not well. After the first dose of RAI, I was very sick, I called my endo 3 days later and told her. She said it was a coincidence and it was probably the flu. I visited my family doctor 3 times and also an after-hours clinic. No one would listen to me that I believed it was the RAI. Well it turns out I had Thyroid Storm and I am very lucky to be alive. After the 2nd high dose of RAI, they told me they didn’t think I would be sick again. Well, guess what, I was. Seven months later and they would like to give me a 3rd dose. Anyways, I guess I just don’t tolerate the RAI and I may opt for surgey in a couple of months. When I first read the literature on Graves I thought great – it’s easily managed and I’ll be back to normal. Well I’m still trying to control it and it’s been 2 years now and still have extremely high levels of Free T4.

[Anonymous January 24, 1997 at 12:27 am Post count: 93172]

#1057222

In reading the literature published on Graves’ one gets the impression that it is extremely well managed. There is very little ever written regarding adverse effects of PTU, Synthroid, RAI ect. I would appreciate hearing any comments regarding bad side effects of medications, decrease in quality of life, and especially desires for alternative therapies for Graves’.
If I am mistaken, and the treatments currently used for Graves’ really control the disease and are well tolerated, please let me know.

[Anonymous January 24, 1997 at 1:46 am Post count: 93172]

#1165472

I am on PTU and the only thing major side affect I have had is a very adverse taste. No matter what I take it with, when I take it, food, etc, it still tastes like I have been chewing on asprin and it remains that taste for at least an hour. And then if later on I drink anyhting out of the same glass I took my PTU with, I taste my PTU again…

[Anonymous January 24, 1997 at 3:31 pm Post count: 93172]

#1165473

I JUST GOT DIAGNOSED WITH HYPERTHYROIDISM YESTERDAY AND THIS MORNING I WOKE UP FEELING SCARED THAN ANY OTHER MORNING. I HAVEN’T TAKEN ANY MEDICATION FOR IT YET EXCEPT PROPRANOL TO SLOW DOWN MY HEART RATE. I THOUGHT I WAS A PRETTY NORMAL PERSON UNTIL YESTERDAY. IT’S MY FIRST YEAR AND SECOND QUARTER IN COLLEGE AND I DON’T DESERVE TO HAVE THIS.

GOOD LUCK

IF YOU HAVE ANY ADVICE FOR ME….FEEL FREE TO E MAIL ME OK

KATHY

[Author]

Posts