[Anonymous July 1, 1998 at 3:50 am Post count: 93172]

#1050397

I have written many times on the BB about radiation to the eyes.I feel it saved me from years of heartache. I cannot do my regular speil right now . Please Email me by selecting my name. I will be glad to explain it all in detail. Good luck….Gwen

[Anonymous July 6, 1998 at 5:38 pm Post count: 93172]

#1149169

I have had radiation to my eyes. Twice. I’m not sure it would be a procedure I would do again.

debra

[Anonymous July 8, 1998 at 3:26 pm Post count: 93172]

#1149170

Dear Debre:}
Hi there how are you doing today,good we hope .I was wondering if you would either e-mail me or post here as to why you don’t think you would have the radiation treatments again,thanks ahead little warrior,Barb muffe@nexicom.net

[Anonymous July 28, 1998 at 11:37 pm Post count: 93172]

#1149171

I was also diagnosed with the eye disease. Did not go the steroid route
because my endo, eye doc, family doc and I all did not like the side
effects that are possible. I started the orbital radiation treatments at
Stanford Hosipital (Palo Alto California) on July 6, 1998 and finished
them on July 20, 1998. Postings by Gwen really helped me make the
cecision to have this done. I found that the treatments were not bad at
all. So far the side effects were 1) greatly increased sensitivity to
sunlight, (sunglasses and clip-ons and a hat)which have worn off to just
the clip-ons and the hat within a week of the last treatment. 2)skin
easier to sunburn. I’m told that will wear off within 3 months. 3)TIRED.
Well if I would go to bed on time! I really wanted to nap in the
afternoons during the treatments. A week later I just yawn. 4)Swelling
and puffyness around the eyes and on the sides(temples)of my head. One
eye is down to almost normal in a week, the other may take a while. 5)
Eyes and skin around them look almost bruised. I’m told this wears off
too.

Had an appointment with one of the doctors at Stanford on Friday (last
treatment was Monday so 4 days later) and the eyes had receded 1 mm.
Hope this helps.
Love

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