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  • Anonymous
      Post count: 93172

      Hi Lynn,

      I’ve had the legs/feet cramping the past 3 weeks also. Started just at the end of
      January. Mentioned it at a family gathering. They, (Mom, Grandma & Aunt) all
      chorused, “Take Potassium”, When I tried to “up” my appt date with my doctor,
      The nurse said, try potassium. When I saw the doc (and diagnosed with the hypo-finally!)
      he said, yep it’s the thyroid. And when I called a friend who has a hypo thyroid, she
      also had Really bad leg cramps. (“Yeah, the kind you wake up from and nearly scream in
      pain?!””Yeah! that’s it!” I reply-well, tears for moi) She said, if she doesn’t eat her
      daily banana ie: potassium, the cramps hit. So.. I’ve been on Levo and Potassium for a week (Doctor said
      the potassium couldn’t hurt..or make a differance rather…) and I haven’t been waking up in
      total leg pain.. phew! I was able to walk a bit farther around campus this week too, without resting.
      or my legs being in agony, just sort of that “muscle burn” feeling.” I need to work on stretches next.
      I’m not sure how much is due to the weight gain also. )sigh(

      Huggers, Dawn

        Post count: 93172

        This is the first I have heard of legs cramping or swelling. This is how after about eight years without symptoms I found out I had a very high thyroid and graves disease again. We were flying back from Mexico and my feet swelled so much that I could hardly walk off the plane. It stayed for a week and then when I went for tests it had started all over again. That was two years ago. My eyes are still very bad with terrible double vision, swelling, weeping and the works. I really would like this to be over. I do get cramps in my legs sometimes but never associated it with the disease. There are so many different symptoms it is scary. Right now my heart is pounding so hard I have to go and take an inderal. Anyway I wish you well. SAS

          Post count: 93172

          Hi Dawn,
          I think I will going out to get some
          bananas for sure, What is Levo?? I went out
          with my SO last night for Valentine’s Day and
          I wore High Heels WOW!!!Wrong Move!!!! I was almost
          crippled by the time I got home. The only thing that
          is comfy are my cowboy boots and my old beat up runners.
          I guess I am lucky to be able to wear either one to work.
          I get so tired of this disease but hey I guess I will
          just have to roll with the punches and learn to live
          with all the little irritants and bothers.
          I sit here by the window looking out at about 1 foot of snow
          and it is still falling……I think I am really sick of winter.
          We need some sunshine and flowers to give a new outlook
          on life!!!
          Lynn from TO

            Post count: 93172

            Hi Lynn,

            ohh.. ouch on the high heels. (Grin-all I’ve been wearing are my tennies anymore.-
            I don’t care HOW it looks with my workclothes.. ;>) Levo (well, there is a longer name-
            It is the synthetic hormone (?) replacement for my thyroid hormone. Did I say that right?

            How have the banana’s worked? I was a bum and read all day today.. My legs haven’t bothered
            me yet today. .. wheeeeeee……

            Huggers! Dawn

              Post count: 93172

              Better stick with flatter shoes: they may look out of place,but what the HEY!
              Tennies are good too…

              The word you’re looking for is levothyroixine: it’s one of those things you have to take
              daily. Yes, hormone replacement or somethin’.

              You two have a good day.

                Post count: 93172

                Cramping legs and swelling feet may be a sign of HYPO thyroidism. In USA
                we have right to a copy of all medical tests. See if you can get a copy
                every time you go. And learn what the results mean. Keep a record.
                After all the problems I have, I find doctors don’t believe me even with
                documentation, but at least I know I’m not remembering things incorrectly.
                And I have the proof that it is necessary to dose at current levels.

                  Post count: 93172

                  I can definitely second this opinion of Joan Ryan’s: keep copies of ALL test results and treatments. It helps you see the pattern of the disease and symptoms in relation to levels. I have even put all relevant test results into an Excel file chronologically and then sorted them by test. A copy of this, with H’s and L’s (highs and lows) color-coded will probably be a welcome gift to my endocrinologist, as she won’t have to juggle the huge pile of paper which comprises my medical records relating to Graves’.


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