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  • Anonymous
      Post count: 93172

      Hi Barb, I e-mailed you before when you were asking this question but maybe you did not get it. Firstly, I know first hand how terrifying it is before surgery with the fright of becoming blind. I had read about the fact that there is a VERY SLIGHT chance of blindness from the decompression surgery. I asked my doctor about it and he told me he had done over 500 decompression surgeries and only had one person lose their sight. Naturally I thought I would be number 2 and it was all I could think about. My sister asked me if that meant blind in both eyes or just one? I hadn’t even thought of that. I faxed my doctor and asked him since I was having decompression on both eyes if it meant I could become blind in both eyes if there was a problem. He faxed back – never both eyes. That made me feel sooo much better before my surgery. One of the things that can happen is excessive bleeding and since I take 292’s often for my migraine headaches I stopped taking these for six weeks before surgery as any aspirin products can thin the blood. I’m sure you have no worry but I know it is hard not to think negatively before surgery.

      With my surgery the doctor went in from the outsides of my eyes. I had four stitches in both eyes. It was definitely worth it. The eyes are back in their sockets and when I have my eyelid surgery they will look normal again. The constant tearing and sensitivity to light is gone. Because I was so frightened and because of my fear of needles my doctors said it was not 100% necessary that I have this surgery, however, my Endo said that due to the fact that this is my second time with the eye disease it would be better to have the problem corrected properly. Barb,I can’t tell you to have decompression surgery, that is your decision, however I can tell you that I am glad I made the decision to have it done.

      Wishing you well and take care, SAS

        Post count: 93172

        Hi, Barb:

        Like anything else, the terminology will grow on you. “Protopsis” and “exophthalmos” (sp???) are two terms used to describe the protruding eyes of some Graves’ eye disease patients. I am not sure if they are interchangeable terms or not.

        I-131 is the specific isotope of iodine that is used to treat Graves’ disease in the RAI therapy, and may also be used in much more miniscule amounts to diagnose the reason for someone’s hyperthyroidism through the thyroid uptake and scan test. There are several different isotopes of radioactive iodine that can be used for the test, however. Not everybody gets I-131 for the tests.


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