I’ve tried Melatonin but have gotten very sketchy results. I don’t have
too many difficulties staying asleep IF I manage to get to sleep. It is
often 3 or 4am when I finally get to sleep. I often function on 4-6 hours
per night. This wasn’t at all the case with me up until about 2 years ago.
When it was at it’s worst prior to the RAI, I once went nearly four days
on nothing but catnaps of 10 or 15 duration per day. It was awful. I
have yet to experience the “crash and burn” phenomena I’ve seen so
many people refer to on the BB after receiving RAI. Think I may still be
subclinically hyper. My opthamologist’s wife is also a nurse who has
Graves. He told me the one absolute he’s learned over the years is
that no two people with GD are alike. There is a tendency towards
similarity of symtomatology among patients, but it’s a highly individualized
disease. In his wife’s case, it took eight years for her to finally stabilize
to a quasi-normative state. This struck me as both upsetting and comforting
Seems sometimes like this is taking forever to straighten out for me.
Maybe God’s trying to teach us all patience! What a lesson! Hang in
there – Luci
PS I’m still wondering if anyone’s heard anything about the use of
Phen-fen or Redux specific to GD patients. I have a story to
share about what little I’ve heard if anyone’s curious. Let me know.