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  • Anonymous
    Post count: 93172

    Christine,

    I received an email note which I think was from you, it wasn’t signed and the return address wouldn’t work.

    Do be sure and get those eyeballs checked when you can as Graves’ eye disease can be quite damaging to the nerve, as well as giving you secondary glaucoma which needs to be watched.

    Since you have graves’ now, make it your hobby, your passion and your area of research. Have fun with it, laugh at it and don’t become a victim. Check out Dianne’s page at netnow.micron.net/~deecee and get a chucle out of some of our eyeball pictures.

    Bruce

    Bruce

    Anonymous
    Post count: 93172

    Christine,
    Loosing an infant is like having your heart wripped out while you
    are awake. It was for me. When it is a small infant others may not
    understand too. Know that our children are together in God’s loving care
    free from earthly ills. A candle this Christmas will be for all children
    who have suffered or are suffering. Know that many support you.
    -JR

    Anonymous
    Post count: 93172

    Hi Christine,

    I have a family history of Thyroid problems. My Grandmother had the
    bulgy eyes but was never diagnosed. She spent most of her life in a metal
    hospiatl for a chemical inbalance. I am not sure if it had anything to to
    do with Graves disease or not.

    Both her sisters were diagnosed with a thyroid problem and were treated.
    This was about 30 years ago. I also swear my mother has suffered from
    it. Since I have been diagnosed she has been tested but they say
    she does not have it. All her life she has had shaky hands and could
    eat anything she wants to (hyperthyroid).

    Knowing that hyperthyroid ran in my familly, I have been tested every
    couple of years and I have always been slightly hyper thyroid. It only got
    really bad after the birth of my first child. 6 months after his birth I
    weighed 100 lbs. I was diagnosed with hyper thyroid. I was taking 600 mg
    of prophyl thyracil. After 60 months on the medication I had stabalized
    so I decided to have another child. I was fine through out the whole
    pregnancy.

    I had my second son 6 months ago and I was diagnosed with the hyper
    thyroid 4 months ago. 1 month ago I was finally diagnosed with Graves
    disease.

    In short, I am sure your baby will be fine. I was told that graves disease
    can disappear when you are pregnant. But maybe that is incorrect. I
    definetly think Graves disease is hereditary. I just think that
    our ancesstors may not have been properly diagnosed.

    I live in Canada an my great Aunts also lived in Canada. I think they were
    diagnosed because medical care is accessable to everyone. My familly
    was also important in the post World War (II) government in Canada. So
    they had acess to the top medical doctors.

    Anyway I hope everything goes well with your pregnancy.

    Anonymous
    Post count: 93172

    Sorry you had to go through all that. I was hardly pregnant (A week or Two?) and miscarried. I have to wonder if it was the hyperthyroidism/Graves. Although there is a genetic problem in my family that might also contribute to miscarriage. So following, I started feeling worse and went to a family dr. who referred me to the endo who diagnosed me w/Graves and began treating me w/PTU and now I just had RAI. But do you know I went to an ob/gyn, too, and he didn’t really know about PTU and looked on his computer, and told me I didn’t have to worry, that I could go ahead and get pregnant! I preferred to trust my endo for knowing, and he said not to get pregnant as the drugs cross the placenta and could be harmful to the baby.

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