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  • Anonymous
      Post count: 93172

      Jake,

      What do you mean by hot phases??? And how can you deal with them without surgery??

      Diane

      Anonymous
        Post count: 93172

        How long did it take for the TED to burn itself out? Mine came back after having lid surgery. Are we talking months, years etc…? I know everyone is different but do most who have a flareup need muscle surgery? It all seems so crazy… I have the surgery to correct the eye problems but then the disease flares causing me more problems so Im back to square one again. Is it possible that pred causes TED to flare? I had 4 surgeries without pred and did just fine…. now being on pred for the last 2 surgeries and my eyes are protruding again. Im sick of this whole mess!!! I feel no one knows anything for sure….

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