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  • Anonymous
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      Brenda, So what did you use after stopping PTU? Sharon

        Post count: 93172

        Hi Sharon/PodyPo

        The specialist decided to give me six months drug free, hoping for remission. I lasted 5 1/2 months. My T4 took off on Boxing Day.
        They did am immediate scan followed by RAI on January 20 1997. I am back on PTU but lower doses. The symptoms have returned. My T4 is still high so I now know it was the PTU and not the fact that my T4 was suppressed. I also wake every morning with internal vibrations at approx. 140 bpm. This only happens when I’m taking PTU. So far no adverse effect on white blood cells. Still I should be off PTU within a few weeks!


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