[Anonymous June 16, 1998 at 5:43 pm Post count: 93172]

#1149679

Oh SAS,
So sorry to hear about your eyes. I am happy for you that you have
an endo and optho that you can work with. I think that sometimes
that is half the battle. You are in my thoughts… *hugs* Carolyn

[Anonymous June 16, 1998 at 6:03 pm Post count: 93172]

#1149680

sas-cnd,I just got glasses with prisms, and they are helping my double-vision. Did they ever have you try them.

[Anonymous June 16, 1998 at 7:38 pm Post count: 93172]

#1149681

Dear SAS,

I think it is so kind of you to relay your story to us.
I know how I have felt with my own personal situation with
the eye problems. You were there for me during my new
awareness to this BB and to help me sort out what I was
going through. I know that God does hear my prayers and I
am going ask him to make those eye exercises work for you!
It does not seem fair to have the surgery for it not to be
sucessful.

Take Care,
Michele B.

[Anonymous June 16, 1998 at 8:58 pm Post count: 93172]

#1050604

Went to the Ophthalmologist surgeon this morning for followup. I was worried because I have been having bouts of double vision again since the muscle surgery. Unfortunately after all the pain in recovery the surgery was not the success that it seemed at first. He said I have a very severe case of scarring within the muscles which produce the double vision. The eye that was straighten is starting to cross again. When going through the testing my vision was double again. I now have to do daily eye exercises. In three months I go for extensive testing again and see the Ophthal again. He does not want to operate again for at least six months. My Opthal was very disappointed as things looked good at first. He has an 80% recovery rate on the first try. Unfortunately I am in the other 20%. When I was going through all the pain in recovery I said to myself I would NEVER go through this again but would cope with the double vision. Well we will see how I feel in another six months. I can’t believe it is going to be so long before I can drive again. I feel so hemmed in and am definitely loosing my confidence having to depend on others all the time. Oh well such is life. More lessons in patience and humility. I am going to continue with my walking but eyes that don’t work take up sooo much energy I will really have to push myself.

I am definitely behind on answering e-mails but just don’t feel up to it right now – will get back to you though.

This disease just has to be so baffling and discouraging.

I just want to say here ANYONE who is having some problems with their eyes get to an Ophthalmologist that is well versed in Graves eye disease as soon as possible. I was going to an Endo that dealt in numbers when this started. Since my TSH was showing normal she didn’t see me or listen to my complaints. It took a trip to my GP when he noticed my eyes were swelling that got me back to the Ophthal. If this was caught quicker I may not be having these problems. Luckily I have an excellent Endo now that works hand in hand with my Ophthal.

Well, I’m going to try to keep smiling and I hope all you can too – as we all know it takes 72 muscles to frown and only 14 to smile!!

Cyber hugs to all, SAS

[Anonymous June 16, 1998 at 9:48 pm Post count: 93172]

#1149682

Hi Karen, I did ask my Ophthal about prisims a long time ago and he suggested I hold off if I could. He mentioned them again today, but says he prefers his patients try to hang on without them if possible. I do not ordinarily wear glasses, except very weak reading half-glasses and he said I would have to get a complete pair made up and felt that I would not benefit that much from them. Thanks for the tip though. I think everyone has to do what works for them. Because I am not working I can cope. It is the not being able to drive that really keeps me housebound and even with prisims I wouldn’t take that chance. It is not worth one little miss costing me or someone else out there their life. Will just have to grin and bear the next six months and then see if I can get up the nerve to go through Strabismus surgery a second time.

Thanks for caring.

Take care, SAS

[Anonymous June 17, 1998 at 9:28 am Post count: 93172]

#1149683

SAS,

I’m so sorry to hear about your surgery failure. I pray that things gets back on track for you soon. You know we’re all here for you.

Hugs,

Emily

[Anonymous June 17, 1998 at 10:26 am Post count: 93172]

#1149684

Hi SAS, just wanted you to know you are being thought of and hope, with time and doing your exercises things will work out for you. That saying, there has to be rain before a rainbow holds true. Hang in there, kiddo, for some of us it just takes longer

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