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Hello Valerie,
I do know what you mean about feeling alone. Sometimes the support we need is just not there. I have been going thru a tough time and a nice kind word here and there would surely help.
Anytime, and I mean anytime you feel like talking, please just
e-mail. Ladycja@aol.comRegards,
Caren
Hi Valerie,
you’re only 112 miles from Missoula??!!! Wow, we are practically in each
others back yard. I’m over in Moscow ID which is a straight shot to
Missoula as the crow flies (course it is a fair distance as the mule
stumbles if you go up highway 12, but it is a gorgeous drive).I’m afraid I don’t know much about how to deal with Walmart regarding
their attitude about your sick days. Do they have any kind of grievance
mechanism you can use to get them to back off somewhat? Can you appeal to
the national headquarters? If you have a report from your doctor stating
your sick days were legitimate, they should not have anything to complain
about. Does Montana have any state rules & regulations regarding treatment
of employees with illnesses? I would definately look into the ADA.Good luck. Trying to deal with work, school and Graves’ is the pits.
Jean C
Jean:
Thanks for your encouraging words. I haven’t ever been to Idaho. Well, 30 feet across the border up the other side of Missoula! At any rate, I am going to make it. I will finish my degree and I will not be at Wal*Mart the rest of my life! I took the gov’t buyout in 94 and moved here. I had a top secret clearance and ran a 1/2 million dollar budget and all that went with it on some classified Air Force weapons programs as a management assistant.
Perhaps sometime I could take a trip your way or you could take a trip my way (not in December, though!). I’d like that.
Val
So glad to see that there are other people in the world with this disease…..not that I would wish it upon ANYONE.!! Love to see the way you all seem to support one another. I became sick in May 2000, diagnosed and had RAI in May 2001, now almost May 2002 and I’m still not BETTER.!! They cannot keep my levels in check enough to feel good for more than a month or so (too high, too low). Does anyone deal with this problem?
My other question is, do any of you have ups and downs? One day you are fine and ready to take on the world, next day you aren’t even ready to get out of your pajamas? If so, how do you deal?
Thanx to all
You will find many on this board that have been, or still are, where you are. Thyroid hormone is very potent, and even a change of 25/1000th’s makes a huge difference. That’s why we are so fortunate to have even half that amount in the several medications available. Just hang in there, and stay in touch on the board.
Yes, I have those times. I try to be aware of what I’ve been doing. Often the “bad day” is because I’m not sleeping enough. I have found that when I am able to sleep as much as my body needs, I sleep 12 to 14 hours a day. When I sleep that much, I look great and feel great. Also, eating junk food tends to cause bad days. I avoid caffeine, sugar, high-fat foods as much as possible. When I indulge, I feel awful later. I guess I’m saying what gets said a lot around here. This disease demands that I take regular action to help keep my health at optimal levels. Exercise helps a lot, too.
I am working hard on paring down my life. I have been getting rid of all the material possessions I can by giving them away to charity and to friends who might enjoy them. My goal for the summer is to go through my files and dump everything I can. I find the fewer possessions I have to manage, the less stress I have. I try to develop routines that help carry me along.
I hope some of this is helpful. It’s hard to avoid the bad days, because I (and maybe some others around here)tend toward the Superman/Superwoman type. This disease has no sympathy for that. If I do more than my body can handle, I pay for it.
Blessings,
RapunzelI couldn’t agree more Rapunzel! This disease really does demand destressing your life. I am also “dumping” extra projects and THINGS I don’t really need or want to take care of. When I try to “do it all” like I used to, I end up too tired, crying and nasty. I think the hardest part is trying to concentrate on the few things that are really important; family, friends and getting better. Staying focused is hard. Good luck paring down your life this summer. That is my goal also.
I, too, have been trying to cut back at work and at home, but it’s not easy. Your’re right about the superwoman/man complex many of us seem to have.
It’s killing me to think I won’t have a garden this year, but I’m not sure how I can do it. It takes everything I have to get through a day of work, and there’s nothing left for planting, weeding and later picking and preserving all those tomatoes, etc.
But then I think I should do it because it will be a good stress reliever to putter in the garden with all the vegetables and flowers. My husband went through with the tiller the other day (we live pretty far north and can just start planting now) and maybe I’ll just put in a few things this weekend. It’s such a treat to watch that stuff grow.
I feel alone often, because no one else really understands what this is like. I don’t look sick, but I am sick, and it’s hard to get people to understand what it’s like. Last night I had to sit down in the middle of cleaning up after supper, because my thighs were trembling so bad. -
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