[Anonymous February 19, 1997 at 5:01 pm Post count: 93172]

#1164712

Hi Sheila,
I had RAI twice. It is different (and very rare) for everyone. I went way
hypo in about eight weeks after the first atomic cocktail. I went on Synthroid.
Then, I started to feel terriffic. I thought, YEA!!! after about 6 mos I
started to feel icky again. Had a TSH and we lowered my dose. About 8 weeks
later, still icky, TSH, lower dose. So, It was a pretty steady progression
to hyper again. Almost 1 year after the first dose, 11 1/2 mos. I was
way hyper again. To the point of beta blockers and all that other stuff.
We went ahead with the other atomic cocktail. I am allergic to the antithyroid
medications and my thyroid goiter was inoperable. At the time I thought that
it was the end of the world. Now, I am feeling much better so I can say…
no-problem. My advice is, take it real slow, levels go up and down on their
own at first. This is a weird disorder. I have been there, so just let me
know if you need support….email me at cpfeife@cms.cc.wayne.edu. hope this
helps….Carolyn

[Anonymous February 19, 1997 at 7:45 pm Post count: 93172]

#1056901

Hi guys and gals! It has been a while! I just got my latest test
results and have a question for anyone who had to do RAI more than
once. Was your decline in TSH a steady process over several months
or did it fall a lot in a short time? The reason I ask…my TSH
was at 4.85 four months ago. (5.00 is max high normal range for my lab)
I was assuming that I would be started on replacement after this
last test (last week), but (per usual when I assume anything) my
thyroid found a second wind I guess. My new TSH numbers put me
back in mid-normal range at 2.96. That’s a 2 point change in
four months?!?! And the wrong direction at that…at least for
starting replacement. While I should be happy that this is a ‘normal’
reading and all hypo symptoms have disappeared, I’m still wondering
if I’m headed for another dose of RAI possibly. My levels have
never changed so drastically even over a six month period, much
less four months. Thanks for any info.

Sheila H.

[Anonymous February 21, 1997 at 7:47 pm Post count: 93172]

#1164713

clp

How did you learn you’d be allergic to anti-thyroid drugs?

Hope you’re better now.

[Anonymous February 24, 1997 at 12:06 pm Post count: 93172]

#1164714

I found out that I was allergic to the antithyroid drugs when I tried to
take them at the onset of the GD in 1993. I had a terrible reaction, tough
to breath, hives and a rash. It was pretty scary. That was a long time
ago and two atomic cocktails later I am feeling pretty perky these days.
My general frustration, I think especially being a woman….is that female
bodies change all the time, someting radically depending on the circumstance,

[Anonymous February 24, 1997 at 12:07 pm Post count: 93172]

#1164715

I found out that I was allergic to the antithyroid drugs when I tried to
take them at the onset of the GD in 1993. I had a terrible reaction, tough
to breath, hives and a rash. It was pretty scary. That was a long time
ago and two atomic cocktails later I am feeling pretty perky these days.
My general frustration, I think especially being a woman….is that female
bodies change all the time, someting radically depending on the circumstance,
So the dose of thyroid medication changes often….or at least for me it
does….thanks for the concern! bye….Carolyn

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