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  • Anonymous
      Post count: 93172


      The RAI did not bother me one bit. My skin peeled a few times but it was a
      minor problem. Only you can decide what to do but I found the RAI the best
      option for me. Go to the top of this BB and look at the links on the Graves
      page. There is a lot of info on RAI and other treatments. Take notes and ask

      Just a point of interest that some of you may want to try. I too used to sit
      in doctor’s offices for hours waiting to be seen. I started to call the doctor’s
      office before I left work to see if he/she was on schedule. If they were really
      behind I would ask them what time they wanted me to come in so I did not have to
      wait. I have found the doctor’s staff very responsive to this and believe it or
      not they begin to remember and now call me if the doc is behind. I had one doc
      who was habitually late and no amount of calling ahead helped. I found a new doc
      and wrote him a nice letter telling him why I left. I received a nice letter back
      and was asked to come back as a patiant. I didn’t go back but at least the doc
      got the message. I still refer folks with GD to him and tell them they may have to
      wait but he is an excellent doc and worth the wait if they can spare the time.

      Hope this helped. My mind is a bit frazzled. My dad’s cancer is out of remission
      and it has spread to his bones and it has ruined my whole week (not to mention Dads).
      Sorry for rambeling on but I get on the net when I have a break and have to type and
      think faster than I can sometimes.

      Take care.

        Post count: 93172

        RAI… does it work?…does it hurt? After they destroy my thyroid, is that the end of all this trouble?
        Thanks to anyone who has had RAI and responds to this. I’m new at this and a little frightened.

          Post count: 93172

          Sorry to hear your Dad’s so sick. It seems like life’s challenges all
          happen at once. Let me know if I can do anything and if you’re talking to NP
          Please let her know she has my best wishes.

            Post count: 93172

            When I had the RAI treatment a year ago, my family and friends were prepared to take off work and the whole nine yards, obviously expecting some horrible treatment and after effects. The treatment was so simple; I couldn’t believe it! You drink the RAI with water and that’s it! It doesn’t taste bad nor can you feel anything!

            Good luck–Jennifer

              Post count: 93172

              Good Morning everyone.
              Well I had RAI on Thursday morning
              I hope I have done the right thing.
              I think I have but sometimes I have doubts
              in my heart. I just cannot wait until I start feeling better.
              Did anyone else feel like this after RAI?
              Lynn from Toronto

                Post count: 93172

                Hi, Lynn:

                I feel exactly the same way. I want to feel well again. Of course, there’s the niggling fear that going hypo won’t be all that much fun. Here’s hoping that both our doctors read blood reports VERY well, and get us on track ASAP.

                  Post count: 93172

                  Hi Bobbi. . .you are correct in assuming that going hypo won’t be that much fun! Quality of life has been much worse for me since that happened than at any time in this whole lousy process. That’s been over two months now, and for me the hypothalamus/pituitary mechanism that creates TSH has “gone to sleep” (common occurrence when you’ve been hyper, sometimes for several months). My endo says he has to make my replacement dose too low so this mechanism will sense the low levels and “wake up”. In the meantime, my thyroid seems to be dying some more, so when I’ve started to do better for awhile with replacement, I get worse again. But everyone’s different! Rachel had RAI nearly the same day I did (June ’96), and she’s been stabilized on replacement for some time now! (Sorry about the eyes flaring up again, Rachel!!!)

                  Best wishes to you both, Bobbi and Lynn, for a rapid passage through the Post-RAI difficulties and on to returned health!
                  Dianne N

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