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  • Anonymous
    Participant
    December 10, 1997 at 2:21 am
    Post count: 93172
    #1052557

    Most (almost all) informational sources (including all the major Thyroid Foundations) concerning treatment of Graves’ mentions nothing of the side effects of RAI on TAO.

    However, I have come across an article or two on studies carried out whose findings suggest a higher risk of worsening TAO after administering RAI…like 33% chance vs 12% for surgery and Methimazole.

    I wonder if the forum visitors agree based on their own experience ?

    Regards

    Anonymous
    Participant
    October 10, 2003 at 3:06 am
    Post count: 93172
    #1154170

    I am wondering if people who already had thyroid eye disease had RAI. What were your experiences? Did it make your eyes worse? No effect? I would really like to hear, because I am afraid of getting the RAI because my eyes are already bulging, dry (I have to close them every 10 seconds for 2 seconds), and don’t want to make them worse with the RAI.

    Would love feedback!

    Thanks everyone,

    Ron

    Anonymous
    Participant
    October 10, 2003 at 9:00 am
    Post count: 93172
    #1154171

    I had a pretty bad case of TED when I had my RAI. My nuclear med doctor strongly suggested I take steroids with the RAI so my eyes would not hit the temporary increase in symptoms that a small number of people get with RAI.

    But I was a testosterone laden knuckle dragger and said “NO” to steroids and had the RAI anyway. My eyes did get worse for about a month and then went back to what they were before.

    So in the long run I took a chance and it was OK… If I ever had to do ti again I would take the sterids with the RAI no question.

    We are only a click away.

    Jake
    On-line Facilitator

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