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  • Anonymous
      Post count: 93172

      I have not been diagnosed with Grave’s disease, but I have quite a few symptoms, plus an extensive family history. (Heart palpitations, dry, sandy eyes, painful for me to look in certain directions, brittle hair, panic, heat intolerance and excessive perspiration, etc.) I am going in for testing in a few weeks, at the earliest appointment I could get).

      I have a question about the eye problems–am wondering if what I am experiencing is possible related to Grave’s disease. I’ve had periodic problems with a sort of double vision. My right eye seems to “twitch,” although people who are looking at me don’t notice any actual movement. It causes my visual field to double, slightly, and for the right side of my vision to shake. The eye seems to go back into alignment for a few minutes, and then the process repeats itself. Someone remarked that the eye does appear slightly swollen, but it is not painful or tender.

      This has been happening to me on and off since I was 24…I’m now 32. I went to see an eye doctor who basically wrote it off as the stress of grad school… I spend all my time staring at a computer screen. Has anyone else experienced anything like this, and is it a possible symptom of Grave’s? I’ve seen double vision mentioned in conjunction with Grave’s, but it always seemed as if the double vision was less transient.

      Anonymous
        Post count: 93172

        First, I hope your fears are unfounded, and you do not have Graves.
        If you do, you are doing the right thing to educate yourself. Also, make sure you go to a specialist in GED, usually a plastic/ophthy to make sure you get the best care. There are many palative measures to make eye disease easier to cope with, and not every MD remembers to tell every patient what they are, so finding others who have been there and can share what works for them is very worthwhile.
        As for the double vision, I have been there, although it is now under control following a couple of surgeries. I found that as my inflammation waxed and waned, my eyes did shift, and my double vision came and went, as the muscles ability to move in those swollen orbits changed. For me, driving often brought difficulty in focusing past the tendency to double vision, not a good time to see 2 of everything! For a time (prior to muscle surgery) I wore press on prism lens and on 2 occasions experienced a sudden shift that required me to reposition the lens immediately. When I asked the ophthy about this, they gave me what was often the reply for the odd things Graves can be, “Isn’t that interesting?” Good luck to you,
        Mag

        Anonymous
          Post count: 93172

          I never even thought about it, but about 9 months before I started with the severe TED symptoms, I too had a severe eye twitch–I can’t remember now which eye specifically, but it was very annoying and was almost continuous for months. It mysteriously disappeared and fast as it appeared, and I have not given it another thought . . . until now.

          Anonymous
            Post count: 93172

            I have Grave’s Disease (diagnosed Aug 1999). In the past week I have been having a continuous eye twitch in one eye only. Do I need to be concerned about this? I can’t find any materials to read about symptoms of the eyes.

            Anonymous
              Post count: 93172

              Hi there fellow GD’er. I didn’t have muscle twitching in my eye but I did in almost evety other muscle in my body. I have a close girlfriend that had lots of facial twitching including the eyes. From my understanding of it is that these muscles spasms occur when there is a fluction in your thyriod levels.So you might want to get them checked if you haven’t lately. I’ve also found some relief, because I still have them quite a bit, in taking magnesium.I don’t know calcium might also help.I don’t know how GD effects the magnesium and or calcium absorbtion.Hopefully this helps.Can any one else help us with this because I’m very interested.GOOD LUCK in your search

              Anonymous
                Post count: 93172

                I have had an eye twitch off & on for 20 yrs. I was diagnosed with GD
                Sept 00. I’ve tried to figure out what triggers it. Have asked the doctors & they don’t know & don’t seem concerned. It’s more annoying than anything. I think that allergies must have something to do with it as the twitch gets really bad during allergy season. I take Allegra & that seems to help. Karen K

                Anonymous
                  Post count: 93172

                  I’ve had twitches on and off for several years. Just recently I have had the eye twitch coming and going for several months. It is very annoying. I suffer from allergies also, but never put the two together.

                  I was diagnosed with Graves back in ’95.

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