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  • Anonymous
      Post count: 93172

      I also developed glaucoma from steroids. I use drops twice a day – morning and evening. I don’t use the drops in the morning on the days I am seeing the eye doctor. I’ve had both early and late appointments and I know my eyes get worse as I get tired through the day.

      Anonymous
        Post count: 93172

        Has anyone else been told that their eye pressure varies
        from having it tested in the morning vs. later on in the day?
        At my recent eye visit my pressure was normal a 3:00 p.m.
        However at one time I was told I had glaucoma but it was steroid
        induced. I had to use eye drops vigorously. Now they want to test the
        pressure first thing in the morning to see if it is high. I
        was just curious to see what others were told about this. Any input is
        appreciated.

        Dee

        Anonymous
          Post count: 93172

          I’m not a lawyer or a doctor, so this is not an answer, but another part to the question. Could part of the problem with getting coverage under the ADA have to do with whether or not your disability is considered to be “temporary” or “permanent”?

          Anonymous
            Post count: 93172

            Hi, Dee:

            When I first went to an optho for my Graves eye problems, he said my pressure was a little high and my optic nerve was enlarged, so he sent me to a glaucoma specialist. It was a morning appt. and she tested my pressure, which was borderline high, and asked me to come back in a couple of weeks in the pm so she could see if I tested higher in the pm. In fact, I did test higher (from 22 or so to 28 or so) and she gave me drops. BUT, my field of vision test was normal. Then because I wasn’t completely satisfied with my optho, I went to another optho that was highly recommended, and he told me he thought the pressure was due to my Graves problems, and that my optic nerve was just normally large. So I trusted him and quit using the drops. I don’t know, it’s so hard to figure out what to do ’cause every doc seems to have a different opinion. But that’s my experience with different pressure at different times of the day. Apparently it is significant.

            Anonymous
              Post count: 93172

              I am hoping someone could tell me if the eye pressure people are mentioning is the same as glaucoma pressure. I don’t have glaucoma but, my mother does. I have to go to a glaucoma specialist twice a year and my pressure is 25 which is high. However, they give a field test as well as check the optic nerve and say it’s fine. Now, I’m worried about the pressure associated with Grave’s. I have had holes in my retina which were fixed with laser surgery so being new to this I am worried about my eyes. Any help would be greatly appreciated.

              Anonymous
                Post count: 93172

                Hi Sunshine,

                The numbers you see here, referring to people’s eyes, are the measurement of how far they protrude out from the face — there’s a wierd tool they use (I forget the name but it’s long, starts with ‘opth’ and ends with ‘ometer’ :-) I think) that spans your face, they put the ends of it kind of in the corners of your eyes (blunt ends, thankfully) and they can see how far your eyes come out from that point. These are not eye pressure numbers.

                Hope that helps!

                -Ski
                NGDF Assistant Online Facilitator

                Anonymous
                  Post count: 93172

                  I’m not exactly sure how it is with other people, but my Neuro-Opth. told me that TED will effect the pressure in your eyes. Before Graves, my pressure was normal. 3 weeks ago I had 26 in right eye and 24 in left. After 8 radiation treatments (I have 2 more to go) I saw her today and my pressure is down to 20 in both eyes.

                  Angela

                  Anonymous
                    Post count: 93172

                    Ski and Angela,

                    Thank you for the information. It helps. When I go to my Dr. I’ll post any info that is given to me.

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