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  • Anonymous
      Post count: 93172

      Hey, Dorie!

      Great news! I have no doubt that you will confirm the suspicion that you don’t have Graves disease. Did he tell you that thyroiditis has the results you had? That is much better to have because it goes away after a while. I should think that you have been away from the iodine long enough: I had taken supplements that had iodine in them, & the nuclear med doc didn’t want to do the test for 6 weeks, to be sure I was clear. My endo pushed it up to about 4 weeks, saying that I was running at such a high level I would had used up all the iodine. So my experience was with 2 different opinions by 2 knowledgable people. My scan showed about 70 percent, they showed me the pix which was an all dark thyroid. I said yay, & they said no, it should be kind of light gray, not black. Oh well. It looks like you are in for a few more tests, doesn’t it. My prayers for your good. Karen

        Post count: 93172

        Well, it seems that I may not have graves after all. My family practitioner
        said I had Graves after two blood tests. I decided to see an Endocrinologist (thank goodnes I have good
        health insurance and don’t need a referral!). The Endo said it is probably GD,
        but that I needed more tests to make sure.

        I just finished the thyroid scan and 24 hour iodine uptake test today.

        The nuclear medicine doctor who interpreted the tests said that I have no
        sign of Graves. He also asked me if I had been taking anything that has
        Iodine in it, such as mineral supplements from a health food store. Well, I
        had been doing just that until about a month ago.

        Does anyone out there know how long it takes for Iodine to leave the body?

        The Dr. also said that in rare cases of GD there is a very rapid uptake and
        very rapid (release? use? whatever) of the iodine. There is a six hour uptake
        test that will catch these cases. I don’t know if the endo will recommend that
        test. He did yet a third blood test, so maybe it will depend on those results.



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