[Anonymous February 22, 1998 at 10:20 pm Post count: 93172]

#1152548

Thank you Jake…….that was very well done!!!!!
Darlene

[Anonymous February 22, 1998 at 10:31 pm Post count: 93172]

#1152549

Jake,

Thanks for your post! You are right it seems like every four months or so everyone needs to be reminded about the rules and regs.

Since there is so much unexplored territory and unknowns with graves this support board is the best way for everyone to exchange ideas, solutions and try to make simple sense! Just as I am so glad to have found this board 8 months ago we all need to work together and treat everyone just like we ourself like to be treated. Hopefully the voice of the people will strengthen research for us before the next millenium!

Have a great night!
Dee

[Anonymous February 23, 1998 at 2:34 am Post count: 93172]

#1051811

Almost two years has passed since this BB was started and we have had
problems with people misreading others posts. This seems to happen every
three to four months. It is not new to us. We have also had people quit
posting and that is sad. We have also had people quit and come back when
they began to experience symptoms that others have had and have stayed.

Freedom of speach is respected here but you will find some folks (depending
where they are in the disease) can be touchy about what is said or implied.
Unfortunatly BB must have rules and disclaimers to exist. There are other
BBs on support-group.com that are having much worse problems. I just ask
that all remember that this forum is read worldwide and we do not remove
posts (only ever did that once on this BB) but other BBs have had to have
numerous posts removed due to content.

Thank you Lynn and others to saying lets get back to support! That and
education is what we are here for. Just remember that none of us is paid
to do this. We do it to help others. Sometimes we piss someone off along
the way but we try not to. When someone else feels attacked we try to keep
things in perspective.

Most people read posts for four months before they put their first post on
the board. We are read over 100k times a month. So you can see with only
15k posts and the Graves board being accessed hundreds of thousands only
a fraction actually post. Most read to get information or to see if they
want to stick around.

I would gladly toun over the title of facilitator if someone would give the
time to do the job once in awhile. You need to be registerd with the
National Graves Disease Foundation and have talked to our director. I have
made many friends on this board and would not trade them for the world.
And yes some of them started off adverseral and we are great friends.

As for the use of e-mail addresses it is used to post directly to someone
instead of posting general posts. The folks who run the BBs for us have
had to increase the size of their systems to handle the volumn of data and
posts that ore done on not just this board but the hundred or so others.
They do this FREE to us and the other support groups. Thank you Archie and
Annette from the bottom of my heart. I thank the great spirit each and
every day that you and Archie called us to ask us if we wanted to do a support
group on the BB

Lets get back to the business at hand and provide support. I know we will
go through this again in a few months but thank each and everyone of you
who post.

To quote a Omaha Prayer

“Father a needy one stands before you. I that sing am he”

Jake
Online facilitator
National Graves Disease Foundation

[Author]

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