[Anonymous October 2, 1996 at 11:33 am Post count: 93172]

#1168640

Sorry about the bummer day, Jake. Been having bad ones the last week myself which was preceded by three good weeks, a real rarity for me! Seems like I have a period of good days like that and feel hopeful that it is all over. Then whammo, it gets me again.

Bruce

[Anonymous October 2, 1996 at 1:08 pm Post count: 93172]

#1058489

Hi All,
Just thought I would drop a note and say I’m not having a good day.
Like the old song said some days are diamonds and some days are stones.
Today is a boulder. For some reason what I have done the past week is
making no sense to me this week. It’s like I was writing in sanscrit or
some foreign language. I have been doubting my judgement more often
than not this past week and the kicker was I went to a meeting last
Thursday at 10AM and I left the meeting for my office. Next thing I
know I realize I am on US 1 ten miles away from my office on my way
home. I didn’t even remember how I got to that point. My mind was on
autopilot I guess and it said “home James”. My memory has been the pits.
So if I have been slow to answer messages or they made on sense, sorry!
This to shall pass. Just needed to talk with some folks who have been
then. Any suggestions would be appreciated.

Regards,
Jake

[Anonymous October 2, 1996 at 3:58 pm Post count: 93172]

#1168641

Jake,

Sorry it’s your turn for a “boulder” of a day. Mine was yesterday, and I think I’m having more than my share of them lately. Sometimes I wonder what for, and then I look at my new granddaughter (she’s 3 months old) and is just wonderful and I know I wouldn’t want to give up watching her grow up. I haven’t really felt “good” since before my surgery last June and I know that I don’t feel like my old self. I don’t think that I’ll ever get to that point again, but I’m working on it. It’s hard to be cheerful when you don’t feel like it and it’s great to be able to vent somewhere where there are others who understand your feelings. You’ve been a great help to me and I know others feel the same way. Hang in there! Today’ll be over soon and then you can work on tomorrow, one step at a time.

Thanks for all your support.

Becky

[Anonymous October 2, 1996 at 6:25 pm Post count: 93172]

#1168642

Just as a little follow up note, I was talking with one of my fellow “normal” employees without Graves and he does weird things too. He was supposed to pick up his wife in downtown Portland last night at 7:00. He lives in Milwaukie, which is about 15 miles southeast of Portland. He left home in time, but drove on to work in Clackamas, which is probably another 10 miles further away. When he got out of the car at work, he remembered that he was supposed to be picking her up, not coming in for a scheduled dip on a part. (We make investment castings here and I work in the Research and Development area, so our technicians have to dip parts in ceramic slurry at odd times.) Anyway, see, it happens to all of us. Some of us just more often.

Becky

[Anonymous October 2, 1996 at 7:30 pm Post count: 93172]

#1168643

I’m sorry, Jake, you still have hard times from Graves’, and want you to know how much I appreciate your sharing of yourself and your time on this BB! I’m ready to chat when we get our passwords, and am looking forward to talking to you and everyone there!

I’ve had a difficult week too. . .maybe it’s in the air. I’m more and more hypo every day, and my next endo appointment isn’t for 2 weeks. . .I’m calling tomorrow anyway, and hopefully he’ll check my TSH again to see if it has come awake so they can start me on synthyroid. Work has been ten hour days under job evaluation (supervisors every minute writing down what we’re doing), with some heavy changes in our work methods. Yesterday I was on the edge of “losing it”, whatever that would mean. . .I told my supervisor that (in a voice shaking and nearly in tears). I’m in no condition for this kind of week! I’m exhausted and mentally foggy and have weak muscles and weak emotions! The fatigue is like in illness, without specifically being ill. My head aches and no analgesics will touch it. There’s absolutely no understanding at work. I would have to call in sick to get any relief on the job.

For those of you who’ve just had the I-131, you perhaps have this to look forward to. Hopefully by then, I’ll be on the mend. Rachel, since we got nuked approximately the same time but you responded a bit faster, I’m right behind you, and I understand now what you were so unhappy about! Now I hear your up/down experience of the replacement and regulation phase and know what is next. You’re a dear one, Rachel!

These are my two favorite Graves’ links on the internet, for those new to Graves’ Disease who are interested: http://www.cyberway.com.sg/~jackie/
http://www.geocities.com/HotSprings/2255/endocrine.htm
Both of these locations have lots of links to information.
Talk to you all in the chat room!
Dianne

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