[snelsen]

#1063579

You will LOVE this site! Everyone here is in different stages of Graves’ or TED (thyroid eye disease.) It is so reassuring to hear from others who are having this hellish experience, and very encouraging to look back to where they were, and see that there is HOPE and promise to feeling like a human being again.
I think it would be helpful for you to read some of the recent posts, to begin to get acquainted with the people and where they are in this fun disease process.
Also helpful to write some more about yourself, that is when kindred souls start writing back. Where are you with your Graves’
Did you have eye involvement too? Look forward to hearing from you again.
At this moment, I am on a train from LA to San Diego to attend the national Graves’ conference. You might be interested in reading all the information that is on the home page, also.
welcome,
Shirley

[JenRitter]

#1018261

Hi there, everybody! I’m Jennifer and I’m a newbie to the forums. I’ve been a Graves disease sufferer for all of my life and believe it or not, I have never met another person with my condition. This is essentially why I joined. I wanted to meet other people suffering with this awful condition — not only to find people to relate to, but to simply make new friends.

I’m very glad to be here amongst such understand folks. You all seem so nice and I’m excited to jump into the conversation. Talk to you all soon! ” title=”Smile” />

[optimist]

#1063580

Hi, Jennifer. I’m sure you have met others with it but just didn’t know it at the time. I had a good acquantence(sp) for 3 yrs that I would see once or twice a week at bible study and or in the community that had graves and i never knew. We are military and have both moved on, but when I posted something a month ago on my FB about finding a good endo, she chimed in. We private messaged and I found out she had graves. I was flabergasted b/c I would have never guessed. She’s one of those that haven’t had any complications and has always done well on her meds. I also met another friend who had it(this is before i knew i had it, and just thought i had a toxic nodule)and it was obvious. She was always sick, and looked sick, she had the eye bulge too. She was very open about her disease. Then there was this 20 something yr old that was eating chocolate one day who was about a size1. I said something to the effect, that she could afford to eat it(we were talking about calories) and she said that she was skinny b/c she was hyperthyroid since she was in HS….my hunch is taht she has graves. It’s funny that i met these women before my dx, and now i don’t know of anyone who has it here lol.

Anyway, welcome ” title=”Very Happy” />

[Kimberly]

#1063581

Hello – and welcome! This board is a fabulous place to get information and support. You might also try clicking on “Community” and “Find a Support Group” to see if there is a support group in your area. There are several areas of the country that have regularly scheduled support group meetings…it’s very uplifting and empowering to get a chance to meet fellow patients in person!

[Author]

Posts