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  • Anonymous
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    Post count: 93172

    Hey, Everybody,

    I just found out about this:

    Hopkins: New Help For Graves Disease

    February 10, 1998

    BALTIMORE (Johns Hopkins) – They call her husband baseball’s Iron
    Man. Baltimore Oriole Cal Ripken has played in more consecutive
    games than any other major leaguer. But Kelly Ripken is an Iron
    Woman.

    For three years she bravely struggled with Graves disease, a
    thyroid disorder that speeds up the body’s metabolism. She was
    plagued with a nagging headache, and couldn’t sleep or control
    her appetite. Two years and a dozen doctors later, a simple
    blood test correctly diagnosed her problem and she began
    treatment.

    Today, Kelly Ripken is trying to make sure no one else suffers as
    she did. She’s donating $250,000 to fund a new outreach and
    education center for people with Graves disease and other thyroid
    disorders. Ripken says the center, based at Johns Hopkins in
    Baltimore, is sorely needed.

    “Five years from now I’d like to know that when I walk down the
    street, people will come up to me and say ‘Hey Kelly, thanks a
    lot. I had thyroid (problems) and I was at my wits end. I
    called your program and now my life’s turned around and I feel
    great,'” says Ripken.

    The information center will include a phone line staffed by
    trained medical professionals who can answer questions about
    Graves disease. The toll-free number is 1-888-595-2131.

    Copyright The Johns Hopkins University, 1998. All rights
    reserved.

    Maybe this will pan out!

    Elisa

    Anonymous
    Inactive
    Post count: 93172

    To answer your question: Yes there is research being done, but maybe not as much as need be. Any volunteers for helping the graves patients out there? We lost a major researcher in this field to an auto accident recently and he was a young researcher. That was a real tragedy! Hopefully more people will step forward and take interest in the cause.

    Regards,
    JAN

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