[cynthia]

#1018425

disease graves effects muscles have read about calcium depletion and also about l -caraitine can help energy levels …. what happened to the person that bloged about l-caraitine?????why did you take off???? or did ya did ask my endo about it and she said she had no feelings one way or another on that supplement……thanks cb

[Harpy]

#1064728

Cynthia,
You missed the title, "Newbie to Site – Graves 3.5 years"
Look down 9 or 10 posts.
Check your spelling – L Carnitine
Can’t look at things now but will do a bit of a search and post a link for you if I think it is appropriate.
Sounds like you’re running 100mph, take some time to breath.
Anyway I’ll just go and refresh myself with your story.

[snelsen]

#1064729

Cynthia, when we are hyper, it is common to be running 100mph, as Harpy said. It is typical of the disease when we are really hyper. I hope that you begin to feel better, more "like you," when the ADT’s kick in. It is easy to feel totally impatient and frustrated with this stuff. I know I was a nightmare to be around when I was hyper. I could realize that only after I began to feel more like myself as the PTU (propylthiouracil) kicked in. I think I remember from your earlier posts, that you did not feel like "yourself." There are not quick fixes or answers to this disease. I have it, i know, and as you move through this process, you will know, too. There is no one medicine, including L.Carnitine, that is going to make a magic change. Until Harpy wrote, I don’t think it has been mentioned on this site. If you read scientific articles carefully, under recommendations, you will read several paragraphs of "further research is needed." in numerous areas.
Your endo said that she did not feel strongly one way or the other, if this is critical in your mind to take (remember that you are hyper right now, and everything about your body is racing, including your mind, then tell your endocrinologist in a timely manner, and she can research it and prescribe an appropriate dose.
The reference Harpy originally quoted is a good article, done by Italian doctors, in a very respected Endocrine journal. They have some hypothesis, made some observations. The scientific evidence for L.Carnitine is not as solid as, say for example, taking a thyroid supplement when we are hypothyroid. I am wondering if you might be happier if you did not try to read scientific journals for all you information. By all means, read the reference Harpy provided. Print it out, take it to your doc. IT does sound like she is open minded.

As a matter of fact, my granddaughter, who has a seizure disorder as result of having viral encelphalitis as a baby, does take L.Carnitine, because one of the meds she takes indicates that this might help her with bone loss, especially since she is an andolescent. Your mind is racing right now. You asked about finding a surgeon. On this very website, on the home page, there is a little box that says, "find a doctor." It refers to find an endocrinologist, and you already have one, and she sounds like a good one. She is in a good posititon to be aware of surgeons who do thyroidectomies in your area.
Remember, you will not feel this way forever.
I know this is a tough time for you, we have all "been there." Remember, your body is bossing you around right now, big time!!

[cynthia]

#1064730

thanks cb

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