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  • Anonymous
    Participant
    January 16, 1997 at 10:30 am
    Post count: 93172
    #1165767

    Hi Barb

    Most people who have RAI have no big problems with it at all and are easily regulated with the thyroid replacement afterwards. With some, such as you might have read here, the process can take longer.

    I have heard the figure of 90% have no problems with the procedure other than the expected hypo symptoms for a while.

    Best wishes! Bruce

    Anonymous
    Participant
    January 16, 1997 at 1:44 pm
    Post count: 93172
    #1165768

    I had RAI 15 years ago and for me it was the right decision – I have never regretted it. There are no major side effects to RAI. I am confused why so many people are so reluctant to do this – it is clearly the treatment of choice of most physicians. Yes, it is permanent – but so is this disease. My biggest complaint is my endo did not prepare me for the fact it would take months (or,in some cases, years) to become hypo and receive the many adjusted dosages of thyroid replacement (I was ready for an immediate “miracle” cure). However, with appropriate medical follow up and treatment, you can eventually feel really good most of the time.

    Anonymous
    Participant
    January 16, 1997 at 3:15 pm
    Post count: 93172
    #1165769

    Barb:
    My mother had RAI for Graves twenty years ago, or so, and is fine. She does, in fact, consider RAI somewhat of a miracle cure, because she got her health back after being very ill with hyperthyroidism. I had RAI the week before Thanksgiving, and am now hypothyroid. I’ve been taking synthroid for two weeks now, so I cannot give you any “long term” reports, other than to say, this is the best I’ve felt since I got sick. I don’t feel “sick” any more, which I consider a blessing. It will take a while to balance this medication in my system, so it isn’t a “quick” fix, but so far, I am very pleased with the results.

    Good luck.

    Bobbi

    Anonymous
    Participant
    January 16, 1997 at 3:21 pm
    Post count: 93172
    #1057329

    I was diagnosed in ’91. Successfully treated w/ PTU and weaned off meds
    entirely in 5/95. Now hyper again, and docs are recommending RAI.
    All I read and hear from patients who have had it seems pretty bad! I
    do not want to take it if there are no folks out there with positive
    experience. Please help! Is anyone out there pleased with results??

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