[Caffer1962 August 16, 2013 at 9:05 am Post count: 20]

#1175886

So today is the day I go for my first IV steroid treatment. My stomach is upset and I’m so weepy and scared. I miss my old, healthy self, but I know I have to do this to save my vision. I want to throw myself on the floor and have good old tantrum and I miss my mom. Thanks for letting me vent.

[KimberlyOnline Facilitator August 16, 2013 at 10:38 am Post count: 4294]

#1175887

@Caffer1962 – You will probably be back home by the time you see this…but hoping that all went smoothly and that this will be the first step in getting back on the road to good health. Please keep us posted.

[Caffer1962 August 16, 2013 at 3:56 pm Post count: 20]

#1175888

The IV went well this afternoon. The nurses were great and so very reassuring. Aside from a nasty metallic taste in my mouth, I’m feeling okay. While I was there the nurse told us that I wasn’t allowed to leave on orders of my primary doc to take my vitals and blood sugar and call him with that information. He wanted to make sure I was good to go home. I believe I’m being well taken care of. They said I may not sleep tonight, among other things, but it goes with the territory. Once I was all set up, it took about an hour for the drip.

[Caffer1962 August 16, 2013 at 9:45 pm Post count: 20]

#1175889

Well, confirmation that I am not sleeping, don’t feel sleepy at all and it is close to 1 am. Took a Xanax; no effect. I just made myself a cocktail and I’m hoping I’ll get relief soon. Hope you all are well.

[snelsen August 17, 2013 at 3:22 pm Post count: 1909]

#1175890

I sympathize. Prednisone does that to you, and it is NOT fun. I hate it.
Hard for me to say anything nice about it. Except that this too, will end!
Shirley

[Caffer1962 August 31, 2013 at 1:53 pm Post count: 20]

#1175891

Hi all, had my 3rd IV treatment yesterday. It’s a bit of a roller coaster, I don’t get to sleep until around 3-4 am, and then only sleep until 11 am or so. I’ll be up late again tonight and probably cleaning like a maniac tomorrow. I usually crash around Tuesday or Wednesday and have slept for 14 hours straight. My good days are Thursday and Friday before the IV treatment. I applied for disability and filled out the FMLA paperwork at work until the treatments are complete. I realized I just can’t do both and my commute is 80 minutes each way. My eye specialist filled it out and I’ll be on disability until November 15th–two weeks following the last treatment. What a relief not to worry about work! My eyes have experienced some relief, much less watering, slight improvement in the redness, but it most likely won’t reverse what’s happened already if it’s scar tissue now. At least it looks like it’s halting the progression, which is what we want. I am ravenously hungry and have gained 4 lbs already. I demanded takeout at 1:30 am. Thank God I have the most supportive fiance in the world.

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