[Anonymous April 1, 1997 at 1:00 pm Post count: 93172]

#1163212

boy am i dingy today? i got our names confused when sending you a message.
sorry!

[Anonymous April 1, 1997 at 4:32 pm Post count: 93172]

#1056370

shannon,

since it’s april fool’s day, thought you may have a “FUNNY” for us.
i need a push really bad. can’t seem to get going. i still think of
your elvis FUNNY and it makes me laugh. as for your cold, i take sudafed
and benedryl and it doesn’t bother me. however our bodies may be handle
things differently. anyway, hope you’re better soon!

happy april fool’s day,

kitty

[Anonymous July 23, 1997 at 9:13 am Post count: 93172]

#1163213

Well, I hope to here from my Endo today. I have lost over 8 lbs this past week and my appetite is poor. The nausea is overwhelming in the morning hours (4am) and when I wake up(7am). I also get sick alot around 8pm. All of this vomitting and nausea is getting the best of me. It is hard for me to even write how bad I feel because it seems as if my body is giving up on me. My family keeps telling me to “hang in there” and “think positive”. Well, at this point I am really starting to dislike their “off the cuff” comments. I was wondering if there is anyone out there who is having a lot of continual suffering too. It seems as if I am getting worse and not better. My next appt. is in the beginning of Aug. – I don’t think that I can wait until then. I sure am having a bad week. Maybe soon I will get better and be able to be an active part of society. My children stay with my mother-in-law during the day – so I miss them alot because I am a homemaker. I hope that there can be some help for all of us. Thank goodness I found this BB and all of you great people. I put an E-mail address, I am at my parents house so it is theirs. I hope I put it in right. Maybe I will here some good news today from my Endo. If I do, I will send it on. Thank you, everyone. Melissa

[Anonymous July 23, 1997 at 1:23 pm Post count: 93172]

#1163214

Melissa I am so sorry you are having such a bad time. Yes the same thing happened to me when I was first sick with graves. The nausea was so overwhelming I had to lay down several times before I could even get dressed. It eased up some during the day, coming in waves at times, and then seemed to get worse in the evening. Don’t wait for your next appointment or for the doctor to call. Call him, tell him what is going on and see if they can’t adjust your meds. Reading your post brought those memories back and it was a terrible time but got better. You will get better too but you need a little extra oomph from your doc now. Good luck!

[Anonymous July 23, 1997 at 7:20 pm Post count: 93172]

#1163215

Melissa:

I felt exactly the same way when diagnosed…and I didn’t wait for my appt. I made a new one. I think my doctor saw me more often than any other patient! He even gave me his e-mail address so that I could always get in touch with him. My mother had to come out to my house every day to help with my three daughters (at the time the baby was just 5 months old). It was very hard with everyone saying to “hang in there.” Someone I never felt they truly understood…but the Lord did and He got me through that mess. Now that I’m on the other side, looking back on it all, I can tell you that it honestly will get better. Don’t be afraid to call your doctor or whatever you have to do to get the help and assurance you need. You’ll be in my prayers!
Glynis

[Anonymous July 24, 1997 at 4:05 pm Post count: 93172]

#1163216

Your message brought back a lot of memories of the early days of my
disease. I remember also thinking that I won’t make it through another
day, but I did, and even though I still have symtoms to battle, I’m
a million times better. I found that faxing the doctor worked better
than phone calls. I didn’t have to get past a secretary, or wait by
the phone for a return call. It allowed him to read my concerns when
he was not in a rush between patients. Just something you might want to
try. I’d be happy to correspond by e-mail, but couldnt get your address
from the BB.. send me a note if you like. bmax@sprintmail.com

[Anonymous July 28, 1997 at 5:17 am Post count: 93172]

#1163217

Melissa,

I have spent the last three days feeling depressed, exhausted and forgetful.

The smallest things set me off and I spent most of today crying at work (see “Insomnia”). I’ve lost a lot of weight too and I was too thin to start with.

It helps me to remember that these feelings are actually a symptom.

I also feel as if I’m getting worse – actually I’m pretty sure I am. However theres still two treatment options I haven’t tried yet – RAI and surgery.

You’re going to hate me for this, but I think your family is trying in a limited way to be supportive. I would be worried about them if they were saying “isn’t it time you were over this?” or “its all in your head!” Maybe they are trying to keep your spirits up. Its just that they cant really understand how bad you feel and of course it grates. I find that I get really irritable with people (whatever they say) because Im so tired and apparently GD makes you irritable anyway. I have a good friend who gives me “cuddles” where I feel about five years old with a mom who will look after me. Sometimes thats better than words.

Dont worry about being an active member of society when you feel really bad – thats when all you have to do is just look after yourself. What helps you? I find that comfort foods (chocolate, puddings etc), going out for something quiet with friends (movies, coffee) and reading something distracting help.

Im sorry if all this sounds trite, but I really hope you start feeling a little better. Remember we always take you seriously and no amount of upsetedness is going to be too much for the board.

Good luck!

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