Hello everyone,
I am new to this board although I have read it often. My daughter has graves disease she was diagnosed last April 1999, She was just 4yrs. old. Her ped. believes she has had it since around 2yrs. old. It has been a hard battle for her and the entire family. The past week was really hard she got so very sick with hyper symptoms, hot all the time, sore muscles in her legs, anxiety attacks, and more. Her blood work came back normal, After a battle with her Endo he put her on propranolol 10mg. three times a day. She started to feel better so Monday he raised her PTU to 50mg. three times a day. He is talking of keeping the PTU high and adding snythroid to the mix. We already did this once and she went hyper very quickly. Her Endo will not do RIA because of her age. If anyone has any information for me I would love to hear it. This is her second Endo Dr. and the only one left in the state who will take her case because again she is only 5. Please help.
Thank you
Kayla and her mom