Oh lord, just got off the phone with my mother. Any advise at all on explaining this disease to others who have no idea? I try to not alarm her, but she lives 1,000 miles away and insits on all the info. Then she frets. Then she calls and drives me coo coo. I love her to death, but oh. I also know how helpless she feels, she wants me to call and say “it’s all gone”. I feel the same way, but just have learned to be patient. Trying to not loose my cool with her, but so tired of GD. I’m not really trying to spend an hour every night on how my day was. I think what I’m having trouble with is everyone expecting me to constantly move forward. Some days are better than others. Some days really stink. Then I see they are dissapointed, me too.
Well guess I just neede to vent a little. Thanks for listening, Michelle D.
sitting here on a friday night in pain just saw your add and it put a smile on my face,had to laugh. i guess my friends, and family don’t understand what i am going through as well.hang in there thanks, steve