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  • Anonymous
      Post count: 93172

      To all of you who reached out,

      I thank you from the bottom of my heart. May I be there for each of you should the need arise, to even a small extent of how much you have helped me! I’ve printed out your words of encouragement and will take them out and read them whenever I get … well, like I was (I hope it doesn’t happen again to that degree). I know there are some rough days ahead, though. I plan to e-mail each of you individually when I get the net configuration figured out – I downloaded a new browser and screwed up my e-mail. The one’s that got through are: Rosemary, Jeannette, Dianne, Emmett and Liz (yes, it got through).

      I got them wrapped and the package was at the post office by noon yesterday. I put on some Xmas music as Jake suggested, tried to keep focused on the hope and meaning of Xmas and got the wrapping paper just a little soggy. Caution, that red tissue paper bleeds when wet and makes an awful mess! Baked those little spritz butter cookies (very bad for you) in the afternoon and distributed to neighbors. I was a good day. Claudia

      Anonymous
        Post count: 93172

        Claudia-
        So glad to hear that you are doing better. Take Care, Diane

        Anonymous
          Post count: 93172

          Thank you for the information, but here are MORE questions! I didn’t realize how many people had these types of problems and it is wonderful that I can ask questions of people who have Graves Disease.

          My mother informed me last week that she had hyperthyroid at one time when the medication she was taking for hypothyroid was too strong. I think she was taking this medication while she was pregnant for me. Could this be the reason I have aquired hyperthyroid? Also, my borther and sisters have no thyroid problems, but my grandmother and her cousin did. Is the aquisistion of thyroid problems primarily hereditary?

          Also, Margaret… has your daughter had any side affects from the RAI and did she have to avoid contact with anyone for a period of time after the treatment? I have heard this was true 30 years ago, but is it true today? The literature I have read on RAI treatment has not mentioned this.

          I am lucky as I have not developed any eye problems related to Graves Disease. But I read somewhere that chronic eye redness is sometimes found in its sufferers. This I do have and I do not believe it is related to my contacts as I have been wearing the same type for years and the redness just started a few years ago. Does anyone else have this?

          Thank you!
          Rochelle

          Anonymous
            Post count: 93172

            Hi Rochelle – I’m having my RAI on the 28th – I was diagnosed just a few months
            ago. My mother has graves too, it’s not clear whether mine was brought
            on by heredity, pregnancy or stress (or a combination of all three)? My
            radiologist has asked me to stay away from my daughter (18 months old) for 4
            days following the treatment. It’s not going to be easy! Also,I’m desperate to
            have another baby, my OB he says it shouldn’t be a problem once I get stabilized
            on meds,hope he’s right!! I’ll write back after my treatment. Good Luck and Take care.

            Anonymous
              Post count: 93172

              hi
              i recently had radioactive isotopic therapy. for about 3-4 days i could
              not kiss , hug, be intimate, eat after/ drink after or they drink after me….. the MDs were really concerned if i was around small infants or small children that would be around my shoulders etc….. i even checked with various veteranrians about my two cats who sometimes get up in my face to smell my breath etc….(beleive it or not : ) )
              I was told that if i was really dangerous to anyone i would have been kept in the hospital in a special room.

              Anonymous
                Post count: 93172

                I’d like to thank all of you wonderful people who took the time and effort to write me in response to my plea for help!!! I can’t tell you how much the letters, encouragement, and advice means to myself and to my daughter, Kailan. She is really struggling and I think it helps her to know that she isn’t the only one who has ever felt the way she does. Her teachers HAVE attempted to label her ADHD/ADD and have very little patience with her. They are more than a bit skeptical of things I have told them and feel that I’m just excusing her behavior out of hand and allowing her to “get away” with things. I only wish one of them had some experience with this. I think to complicate matters is the fact that another girl in Kailan’s class has Graves’ (can you believe it?!?!? 2 in the 6th grade!!) and she is responding much better to treatment than Kailan. They don’t understand why Melody isn’t having the problems that Kailan is. My only reasoning is that Kailan had it much longer and it went untreated much longer and not everyone reacts the same way to things. Anyway, thanks to all of you again!!! I knew I could count on the great people who come on this board!! You came through again!! Love, Erin

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