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  • Anonymous
    Inactive
    Post count: 93172

    well i find that in the last 8 months, i have been losing
    alot of close people in my life,to this disease tried to
    educate some people about graves but in the long run
    i have frightened alot of people away. Has anyone gone
    through this.

    thanks

    Anonymous
    Inactive
    Post count: 93172

    I’ve found it’s not my close friends that I’ve scared off. Just some
    acquaintances. I’ve been careful with my good friends not to talk
    about it too much. I had the initial fear/concern, etc., which I wanted
    to share, but then after awhile I realized they may get just a little tired of
    hearing about it. They are more educated about it now and if they
    want to know more, they ask. I have to say though, that I don’t
    have that many really close friends anyway.

    The “others” say things like, “you’re eyes are really red,” or “You like
    like Susan Sarandon.” Well, I don’t look like her, and no one “ever” told
    me I looked like her up until last year. They don’t know what else to say.
    So, I respond, “It’s the Graves Disease,” and that usually sends them away.
    I may get a few additional questions, but that’s it and off they go.
    That’s fine with me.

    Long story short, you’re not alone. You put the word “disease” on
    the end and that puts something scary in some people’s heads. I guess
    the other point would be to be careful how much you talk about it
    around your friends. Believe me, I know it can be consuming sometimes,
    but that’s why this support group is here.

    Regards,

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