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  • Anonymous
      Post count: 93172

      Hi, Barb!

      I’m sorry if I offended you in any way. It was not my intent to
      belittle your situation or suggest that you (or your doctors)
      should’ve handled it differently. I really wanted to offer support
      and understanding. I know some of what you’re going through at this
      point in your treatment, as you prepare for your long-awaited eye
      surgery. You’re probably right – your diagnosis of Graves’ and
      treatment should’ve come *a lot* sooner than they did. “Wait and see”
      wasn’t necessarily the best approach for you. You’ve been through so
      much and you deserve so much more.

      My point of posting (and I did a bad job of making it) was not only
      to give you support, but also to send a message to the newcomers on
      this BB that Graves’ disease doesn’t have to be an ongoing problem
      that will alter your life forever. To be honest, Barb, if I had just
      visited the board for the first time and read your post I would’ve
      been scared to death of what my future held with Graves’. I’m not
      saying that you shouldn’t share your story and feelings. I just
      want to offer a different perspective from someone who’s been there
      and back. Most people DO get better after treatment, and most
      people return to life as they knew it before Graves’. The people
      posting on this BB tend to be newcomers to Graves’ or people who
      have ongoing problems. We don’t hear too many success stories on
      here, because those people have moved on with their lives. So, why
      do I continue to post if I’m better? I like to! I’ve made many
      friends on the board, I continue to learn more about Graves’, and I
      offer help when I can. I have asked my doctors at Mayo if they have
      many “repeat customers” with Graves’. They stated that once my eyes
      were treated and thyroid levels were normal, they didn’t plan on
      seeing me again. Of course, I still have to have my thyroid levels
      checked once a year, but I can go through my local GP for that.

      There is a light at the end of the tunnel, Barb, and hopefully
      yours is looking brighter these days. Stay brave, little warrior!

      Wishing you health and happiness, Debby

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