[Anonymous August 28, 1998 at 9:17 pm Post count: 93172]

#1049925

Has anyone read anything that discusses the damage that RAI can do to the brain? I was reading that some how it affects or injuries the brain and produces some long term changes? It also mentioned how you may never be the same as pre RAI.

[Anonymous August 30, 1998 at 10:31 am Post count: 93172]

#1148111

I dont remember where I read it but if I come across it again I will post it. I was asking if anyone knew about it.

[Anonymous August 30, 1998 at 11:58 am Post count: 93172]

#1148112

RTrex, I haven’t ever read anything about brain damage from RAI, and question whether what you read was from a reliable source. Sometimes what we read is just someone else’s personal conjecture, and I think it’s very important for us all to realize this, and give sources when possible as we share important new information.

I had RAI and my brain doesn’t work the way it used to. Does this mean the RAI caused it? NO! It could be the Graves’ antibodies make an attack on the brain (which has been suggested but not demonstrated in medical studies), or that thyroid replacement meds don’t do as well as our own thyroids at supplying the exact amount we need (or enough T-3, for example). The brain is one of the most sensitive to thryoid levels, so that’s a possibility. These questions, and whether the depression often associated with Graves’ is from antibodies or thyroid levels or some other cause, haven’t been adequately researched and the answers aren’t in. I’d really like to see some research going on. In the meantime, I think if there was reliable information suggesting that RAI caused brain damage, doctors would have to stop giving RAI for fear of malpractice suits. All of this is only my opinion–take it or leave it.

DianneW

P.S. Thanks, Jan and Sally, for your good wishes!

[Anonymous September 6, 1998 at 8:52 pm Post count: 93172]

#1148113

I am so glad to see the BB back up. Just thought I would try and there you are!!
This past Thursday I went for my scheduled visit to my Optho and Endo. My eyes are no better no worse, but having some pain when I move them. If it gets worse, the Optho said to call and we will make plans for radiation. Then went to Endo. One month ago I had to quit Tapazole because of an allergic reaction. Thursday I am told I am allergic to PTU also. The rash had not gone away–i had noticed that. I thought it took some time to go away, but the Endo said no, it should have disappeared within the month. My neck and face were really broken out with a fine red rash all over. So, now I face RAI the 6th of October. I am on no medication until then, even the Inderal gives me Asthma. I asked about surgery, and the Endo said it was my decision, we could do either one, but that with no medication the risks would greatly increase. He called my Optho to get his opinion of the matter, since we were trying to wait things out for my eyes to calm down. The Optho wants me on 2 weeks of Prednisone at the time I have my RAI.
I guess I am just kind of shaken at the suddeness of this all, but I know it has to be done. My levels will not come down to normal without medication–I can’t have that–so forward we go. I just worry about the effect on my eyes and such. I know nothing has been proven, but it is still a little scary to me. I am so allergic to many medications–guess I am just falling apart.
Thanks, all, for listening. So glad you are back up. Missed every one of you. Keep up the good work!
Blessings to all,
Ellie

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