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  • OttoHart
    Post count: 1

    Our 14 year old daughter was diagnosed with graves disease 2 weeks ago. What percentage of children have this disease? Our School is completely un responsive to our needs. They treat her like all the other kids not allowing her to use restroom because she goes all the time and they believe she is doing it to get out of class. She is stressed to the max in school and falling behind so they punish her with detention. They are clueless to the disease and we would have thought that they would have other students that have had it. Does anyone know how common this disease is in children?

    Kimberly
    Online Facilitator
    Post count: 4264

    Hello and welcome – Graves’ is much more rare in children than adults, but that is AWFUL that the school isn’t recognizing this as a serious condition. I’m including a couple of links below, but check out the “Students and Graves'” bulletin first. The school needs to set up an Individualized Education Plan to address your daughter’s needs while she is being treated. To not let her use the restroom as needed is just flat out cruel. :-(

    Wishing you and your daughter all the best!

    (Note on links: if you click directly on the following links, you will need to use your browser’s “back” button to return to the boards after viewing, or you will have to log back in to the forum. As an alternative, you can right-click the link and open it in a new tab or new window).

    Students and Graves’:
    http://gdatf.org/about/about-graves-disease/patient-education/students-graves/

    GDATF YouTube Channel:
    (look for videos from Dr. Scott Rivkees and Dr. Michael Gottschalk, as well as the playlist of the Children’s Hospital of Philadelphia seminar):

    https://www.youtube.com/user/GravesAndThyroid/videos

    https://www.youtube.com/user/GravesAndThyroid/playlists

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