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  • Anonymous
      Post count: 93172

      First of all, I’m sorry if there is a blank message from me on the board. I hit enter after my e-mail address and suddenly my message was sent!
      I just found out today that I have GD. My doctor says it probably only started 6 months or so ago. I haven’t had any weight loss or gain, but have heat intolerance and rapid heart beat. I decided to try Tapozole before having the Iodine treatment. I’m hoping that will take care of it. I was suppose to start Premarin today but she told me to hold off for about six weeks. I’m not having any eye problems. I’ll return to the board frequently–reading what everyone is experincing really helps!

        Post count: 93172

        Hi, I’v been with this thing for about ten years. Medication worked the first time, then it came back badly about two years ago and I finally went for radioactive iodine. My thyroid readings are just a little high now but my eyes are a mess. After a 67 day scare as to whether I had breast cancer and three biopsies I should be excited to find out the mass was benign. However my eyes have been so bad lately that I have jumped from one specialist’s office to the other on the same street. I go in Mon, Wed and Fri of next week for intravenous treatments of cortizone and prednisone in high doses.
        Apparently the side effects are not as bad taking it that way. I have to go on Tues and Thur to get blood tests to make sure everything is going OK. For someone that is terrified of needles this is not going to be pleasant!! I’m so tired of having fluid around my eyes and double vision. I can’t drive because of the glare and must wear sunglasses around the house on bright days. I do work and have had to miss a lot due to health the past few months. I’m hoping this will do the trick. Has anyone out there experienced these treatments. I try not to let this get me down and live one day at a time, however, I feel I only have half days when I can’t see properly. It gets pretty depressing.
        Have been away from computer because it hurts my eyes but reading all your comments and realizing others are going through this painful time too – makes me feel we can all stick together and get through this.
        Thanks, Shar

          Post count: 93172

          Hi Sandy,

          I think we’re all sorry you are here, but glad you found this BB. I
          just found out 1 1/2 weeks ago I had GD and started PTU a week ago –
          kind of following in Karen’s footsteps. So far, I feel slightly better,
          but not enough to quantify.

          I only had an 8 lb weight loss even though I’m starved all the time.
          Have the rapid heartbeat, itches, irritated eyes, water retention, and
          trembling. Have only had 2 short episodes of double vision. I’m
          hoping that my case is light enough that the PTU works.

          I’ll add you to my prayers. Stay in touch. -Donna

            Post count: 93172
              Post count: 93172

              Hi! My name is Lynn and I hail from Toronto, Canada and I have had GD
              for about1 1/2 years. I have got all the classics, the itch, tremors, fatique
              red eyes, double vision at times, sometimes I think the list gets longer
              and longer. I am 49 years old and work full time. I was off work for about
              5 weeks last year when I was actually diagnosed. The symptoms had
              been around for awhile but I didn’t know what was wrong. I was on tapazole
              and ended up in complete remission. The endo took me off all medication and now
              all the symptoms are back. I see him in a week so I guess I have some decisions to make
              . Im so tired of all this I don’t know what to do. Sorry I’m rambling but
              I just had to let it out. This bulletin board is excellent and
              I really appreciate having somewhere to go when I’m feeling down.
              Thanks for listening.

                Post count: 93172

                This is to whom ever might have an answer. I was diagnosed with Hodgekins Disease 4 1/2 years ago. After my radiation treatments my thyroid went Hyperactive. It settled down on it’s own after about 6 months, now I’ve been diagnosed with Graves Disease. Does anyone else out there have both of these diseases?!! Let me know if anyone of you think the 2 are related somehow!!

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