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  • Anonymous
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    Post count: 93172

    Hi,

    I was 35 when diagnosed. I was on PTU and propranolol. After a few months on the PTU I was able to go off the propranolol with no problems. After 2 years on PTU I am currently in remission. The treatment can be a pain (trying to remember to take a zillion pills over the course of a day) and the after taste PTU left in my mouth and the constant getting stuck with needles (my phobia is much better now), but it is worth it.
    Glad you found this place, it saved my life after I was first diagnosed. I was glad to find out I wasn’t crazy and there were reasons for the way I felt. If you can, check out the Wed nite chats, it is a great help and it is fun and supportive to be able to “talk” to other folks.

    Anonymous
    Participant
    Post count: 93172

    i did rai and have not regrets . it was short and simple. everyone has to make their own choice….i just didnt like the idea of being put to sleep if i had a different choice. good luck, you will get better….oh yea – you dont glow, the crazy girls i work with had all of us go in a dark room to be sure but i didnt. sandi.

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