[Anonymous]

#1054113

Hi everyone, I was diagnosed with Grave’s in June. I was wondering if anyone out there         
lost their taste while on PTU?? My doctor switched me to Tapazole last
Friday, and still no taste. It’s 3 weeks without taste now, and I’m going nuts!!

I am soooo tired all the time too, and the anxiety is awful. I go to work and home, that is all I can handle right now.
How long did it take to feel better? I’ve been on medication for 8 weeks now.
Thanks for listening.

Joanie

[Anonymous]

#1157889

It probably is different for each individual in terms of how long it
takes before an anti-thyroid drug makes a difference in how you feel.
After all, everybody is at a different point with the disease when they
start taking it, and everybody’s reaction to a given drug is individual
as well. So, don’t be discouraged if it takes a while for the drug to
work.

Best of luck to you with your treatment.

[Anonymous]

#1157890

My sincere thanks to all of you for honoring the spirit of this board and “letting go”. It is pretty obvious that the bb will not (truth be known, cannot) be shut down. What I learned from Archie is that to shut it down would effect the hundred-plus bb’s that are part of support-group.com. What can be done, however, is to put some sort of block on all incoming messages. That would leave all the old messages, but no new ones could be posted. I hope we never have to do that. Jake posted earlier that only three posts have ever been deleted from the bb up to now. I am embarrassed to say that one of them was from me. I had to eat buckets of humble pie!

To the many people that wrote me, thank you for your support.

[Anonymous]

#1157891

I was diagnosed with Grave’s 3 year’s ago – had RI this past summer (july ’99) and still juggling doses to get my levels correct. Last time my numbers were on the high so my endo backed off the synthroid dose…I just had a blood test so I’m waiting for the results. I was wondering if anyone else was experiencing the emotional ups and downs I am…It’s seems after a long period of physical or emotional stress I have trouble with mood swings and panic. I’ve been treated with antidepressants and have good results but, don’t like the idea of being on them the rest of my life. I have a long commute to work and a soon-to-be 7 year old at home and these up’s and downs are driving me crazy. Any help would greatly be appreciated. Am I just nuts?

[Anonymous]

#1157892

I’m 36 and recently married. I was diagnosed in September of 1999 and intend to start a family within the year. I’ve been taking PTU for five months but because my Endo has frightened me about taking PTU while pregnant, I’m begrudgingly going to have RAI treatment soon. My endo has taken me off of PTU for four weeks to “see what happens”. The blood test results will decide if I go ahead with the RAI or remain unmedicated. I’m skeptical that remission will happen only five months into my ATD treatment and fear the worst. My biggest concern is having to deal with TED after RAI which seems to be the norm (I haven’t had problems with ATD yet).

I’m desperately looking for feedback from women who have successfully gone through pregnancy while taking PTU and for anyone’s thoughts in general on RAI versus surgery and homeopathic treatment of Grave’s Disease.

Victoria

[Author]

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