AnonymousDecember 1, 1996 at 7:47 pmPost count: 93172
Hi Judy! Welcome to our GD family! I’m glad to hear that life after GD treatment is pretty wonderful. At this point, that’s my biggest concern – what’s next?!
I had RAI six years ago, multiple eye surgeries, and am on daily Synthroid (which is not accurately adjusted yet.) My doctors say that a recurrence of the eye troubles or any of the other symptoms (i.e. skin rash or nodules on the shins) is pretty unlikely, but they really don’t know. Everyone with GD has such different stories.
Did you have eye surgery? Beyond puffiness, any other eye problems?
Thanks in advance, DebbyAnonymousDecember 1, 1996 at 8:25 pmPost count: 93172
Hi Judy! Welcome, and we hope you will stick around. It’s nice to hear some encouraging news about the future with GD! I had RAI in June, and am in the process of getting the replacement levels adjusted, and having unpleasant hypo symptoms. When I had the RAI, I thought I was just about through the worst of things. I keep thinking that, and it hasn’t happened yet, which gets discouraging sometimes. Rachel and DonnaN and I just had a nice chat in the Support.Group.Com chat room. Hope you’ll get registered (check the SupportGroup homepage out), and join us all December 11th (I think). Dianne NAnonymousDecember 1, 1996 at 11:30 pmPost count: 93172
I was diagnosed with Graves 25 years ago, just after the birth of my second
daughter. (I am 50 years old now). I started having symptoms when Jackie was
about 4 months old-weight loss, diarrhea, nervousness, and eventually tremors,
tachycardia and eye problems. I was diagnosed when the baby was a year old, and was supposed
and was supposed to have surgery, but I developed a severe reaction to the
Tapazol I was taking, and ended up having radioactive iodine treatment. The
treatment made me Hypothyroid, and I have been on synthroid ever since. For
what it’s worth, I do have residual symptom-My eyes bother me-they are still
puffy, and I have a problem with dry eye-as well as occasional heart “flutters”
and my energy level just never went back to what it was. But in general I feel
ok. I also have been able to keep my weight at a normal level, as long as I watch
what I eat, and excercize. Basically, I live a normal life.
I was alarmed at how sick some of the people posting to this bulletin board
are. Are you taking synthroid? Have you recently been diagnosed? I know that
in my case it took along time to figure out what was going on-I thought at
one point I was having a nervous breakdown.
If anyone wants to E-Mail me, I would love to hear from you. It’s great that
this group exists. I wish it existed 25 years ago.
JudyAnonymousDecember 2, 1996 at 5:43 amPost count: 93172
It was great to hear from you! I never had eye surgery. I had originallyAnonymousDecember 2, 1996 at 5:43 amPost count: 93172
It was great to hear from you! I never had eye surgery. I had originallyAnonymousDecember 2, 1996 at 6:08 amPost count: 93172
It was great to hear from you! I never had eye surgery. I had originally
been told that my eyes would “go back to normal” after treatment. They did
go down, but have remained puffy and bloodshot-I am always being told that
I look tired! I am sensitive to light, and am careful not to go out without
sunglasses. I also suffer from dry eye. I use artificial tears, which helps a lot.
a lot- I was geting broken blood vessels in my eye, and little sharp pains
inside the eye-that scared me until I spoke to an opthamologist! the pains
were tiny blood vessels breaking, and the artificial tears seem to ease
that problem. (By the way, the dry eye started a few years ago-I guess it’s
a long term side effect from the Graves)
I considered surgery mostly for cosmetic reason, but decided that it was
silly to do it for reasons of vanity.
How long did it take for the Graves to be diagnosed? Do they feel you will
need more surgery?
JudyAnonymousDecember 2, 1996 at 6:23 amPost count: 93172
Thanks for the welcome! Now if I can figure out how to post to this thing
without doing everything twice!
I went from hyper to hypo after my RAI. It can be hairy until they get the
dosage adjusted. Over the years I have had to have adjustements
periodically. Stress can “kick it up”, So can a weight loss. I kind of can
tell when I’m not “running right”
I’ll try to be at the chat on the 11th. Again, thanks for the welcome!
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