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  • Anonymous
    Post count: 93172

    I w

    Anonymous
    Post count: 93172

    I w

    Anonymous
    Post count: 93172

    I was diagnosed with Graves in March of 1995. I’ve had 2 very high
    doses of Radioactive Iodine and my thyroid is still going strong. My Free
    T4 levels are as high now as they were when I was first dianosed (over 90)
    My doctor says I may need a 3rd dose. Has anyone had a similar
    situation.? I also have the eye disease. It’s not as bad as some patients I
    have seen but it still bothers me. I occassionally have double vision.
    Do the eyes ever go back to normal? In the last month the size of my
    thryroid has decreased a little.

    Anonymous
    Post count: 93172

    I have had GD since 1979. I was not given any option except surgery. Now I understand surgery is only recommended as a last resort. I continually go from hyper to hypo and cannot seem to keep my levels constant. Reading this bulletin board has been like reading my own life story. The amazing thing is no docs have ever associated these syptoms to the GD. I thought I was going crazy. I have never been told to see an opthamologist and thought the doublevison I experience at times was just eye strain. I also have MVP and was told that was common in people with GD, has anyone else ever heard that??? Any info or help would be greatly appreciated. Why aren’t doctors more informed about this disease???? I had one doc misread my labs when I was hypo and lowered my synthroid meds. Another doc put me on a beta blocker for MVP that was contradicted for patients with thyroid problems. Ended up in the hospital for several days. Have very little faith in medical community in dealing with this disease.

    Anonymous
    Post count: 93172

    I have had GD since 1979. I was not given any option except surgery. Now I understand surgery is only recommended as a last resort. I continually go from hyper to hypo and cannot seem to keep my levels constant. Reading this bulletin board has been like reading my own life story. The amazing thing is no docs have ever associated these syptoms to the GD. I thought I was going crazy. I have never been told to see an opthamologist and thought the doublevison I experience at times was just eye strain. I also have MVP and was told that was common in people with GD, has anyone else ever heard that??? Any info or help would be greatly appreciated. Why aren’t doctors more informed about this disease???? I had one doc misread my labs when I was hypo and lowered my synthroid meds. Another doc put me on a beta blocker for MVP that was contradicted for patients with thyroid problems. Ended up in the hospital for several days. Have very little faith in medical community in dealing with this disease.

    Anonymous
    Post count: 93172

    Hi Jackie,

    Sorry to hear your trouble. I am curious if the “MVP” you speak of is
    Mitral Valve Prolapse, if so that is something I have also. Almost 2 years
    after RAI and supplemented with Synthroid shortly after, I am back on Beta-
    blockers and still not right. Curious if you have heard of others the same.
    Take care of yourself. Julie T.

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