[Anonymous March 18, 1997 at 3:50 pm Post count: 93172]

#1056516

I am very athletic, and I’ve been exasperated by my resting heart rate
since I got Graves (hyper). It’s been around 88 – 98 bpm for about
six months now. I’ve been taking Tapazole for a couple of months,
and now my resting heart rate is back down to normal (around 66 bpm). I
am slowly reducing my Tapazole dosage (down from 15mg per day
to 10mg per day), and I’m going to see how I feel over the next couple of
weeks. My endo told me to take 15mg per day and come back in six weeks,
so I’m going against his orders by dropping my dosage. But I don’t want to
become hypo. Has anyone else monkeyed with their Tapazole dosage in this way?

[Anonymous March 19, 1997 at 10:25 am Post count: 93172]

#1163631

I’m on PTU and my Endo has given me cart blanche to monkey around alittle
with my dosage. My heartrate is back to normal, it’s been about six months for
me, too. I was taking 3 PTU a day when we lowered to 2 X a day, I got hyper within 4 days.
So…we went to 3 PTU one day, 2 the next. That worked and after a while
we tried the 2X a day again….still made me hyper (just took a little longer).
Now I’m trying 3 PTU one day, 2 a day for two days….gotta keep a chart so I
don’t get mixed up! He said at any point if I feel my hyper symptoms returning
take the Inderal and go back to the lowest PTU dosage that worked.

Glynis

[Anonymous April 24, 1997 at 7:34 am Post count: 93172]

#1163632

I am 2-1/2 weeks s/p RAI. I have been on a beta-blocker for more than a month to control my tremor and my heart rate. I started taking 50 mg. a day, but have been steadily increasing (per my endo) Now I’m taking 150 mg. a day and still my heart rate vascillates between 80-100. This seems to high for me. It has mostly stopped my tremor, but doesn’t seem to have slowed my heart much at all. Has this happened to others?

[Anonymous April 24, 1997 at 8:27 am Post count: 93172]

#1163633

Did your endo tell you what heart rate was too high? I suspect it’s different for each of us, depending upon our original condition, and our age. For me, the endo doesn’t think 80 bpm is anything other than “normal”. If you are concerned, why don’t you call your endo and double check. It can’t hurt. There is a period after RAI in which the impacted thyroid cells release their stored hormone, so it is not unusual for symptoms to increase, temporarily. But if it is causing you worry — check with the doctor.

Bobbi

[Anonymous September 6, 2000 at 3:12 pm Post count: 93172]

#1163634

I can’t believe I found this! I was diagnosed with Graves 6 months ago and felt like the only person in the world, certainly the only person I know! Finally people to talk to who understand! I am 32, married with one little girl who will be one next week. I started having symptoms after my baby was born, thought it might be some post-partum depression. My wonderful (now ex) OBGYN put me on Paxil, when that didn’t work she told me I should see a psychiatrist! All of this escalated when my husband was hit by a drunk driver (he’s fine) and I fell apart. She told me I should just look at it as “a bump in the road and move on” as I sat completely sobbing in her office telling her how awful I felt! Two minutes earlier she had felt my thyroid saying “hmmm, feels a little enlarged, oh no, it’s not”. Well one month later while on a visit home I ended up going to my hometown dr. who immediately diagnosed me! I now have a great Endo, I’m on PTU and feeling pretty good but wish my nodules would go away.

[Anonymous September 7, 2000 at 11:07 am Post count: 93172]

#1163635

Hi Suzie
Welcome to the board. We have all had experiences like yours and we like to share what we are going through. Feel free to post if you have questions or comments, or run a search of past posts for lots of useful information. You are not alone, we are all Graves Warriors here!

Melanie

[Anonymous September 8, 2000 at 10:40 am Post count: 93172]

#1163636

Hi MsMelanie, I noticed your profile said you are 29? I am 32. One of the issues I had a hard time dealing with was that I feel to young to have these problems. My grandmother had thyroid problems – in her 60’s. One of my biggest hang ups has been getting used to the fact I have to live with this for a long time and have to take meds for the rest of my life. HOw about you, did you have a hard time with this? I hate to talk to my friends about it. They wouldn’t understand, and I feel like a whiner.

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