Hi Kathleen: Yes I have the same as you, and am feeling quite down at this time. I’m sorry you feel that way, I think I can truly empathise (?) with you.
This is really a difficulty disease isn’t it? First of all one feels tired, and then no-else really knows what it’s like, unless they have been there. There are lots of people on the BB who know how we feel though, and there seems to be some comfort in sharing our frustrations. Have you been posting here a long time. I have been here (I can’t remember exactly) about 2-3 months. There are lots of people to chat with.
What kind of treatment have you had for your eyes? Do think you are going into the cold phase? I do hope that you will be feeling a lot better soon. The warmer weather will help, you know, getting out in the sun. Hopefully, it will warm up here soon.
Keep in touch. If you have questions let us know, maybe we can help further. There is quite a lot of information ‘out there’, but I have found, after a time, there is not much new being added.
Hazel