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  • Anonymous
      Post count: 93172

      I had RAI 4 1/ 2 years ago. no side affects. however I did get hypothyroid really fast and they have never been able to regulate my blood levels (altho I think I’m in a minority with that complaint–except for the people on this BB.
      My Dr. told me that surgery could possibly affect the vocal cords negatively. Also possible but highly unlikely is that thyroid would come back after RAI. I hope this helps….Kendra

        Post count: 93172

        Hello all,

        My wife has grave disease for the past 3 years. The tapozole
        is not having any effect. As soon as the dosage is lowered
        her thyroid level goes really high.

        Anyway, it’s time for a more terminal treatment. She is
        trying to decide to either go with the operation or the
        iodine treadment. However, She is very scared about the
        radiation iodine treatment.

        If you had iodine treatment or the operation could you
        respond to this message and may be tell me your experience
        with your particular treatment?

        Thanks for any info,

        Ps. by the way what is PTU???

          Post count: 93172

          I had a partial thryroidectomy 15mths ago because the endo said the RAI
          could make my eyes worse and because I am also hearing impaired and my eyes
          are also my ears I opted for the operation. But also I could not get any
          information re statistics etc.or even up to date info from anyone there
          was no support group in Aust at the time. The operation went well even tho
          I was afraid but because we need to get on with our lives we have to make
          a choice and be happy with that. Because I am a mother to 4 children I had
          to get sorted quickly as my TSH level was 118 and I was in a bad way. The
          scar is hardly noticeable and it only took me a few days to be able to
          swallow etc.
          My parathyroid (calcium production PLEASE CHECK YOURSELF because I’m tired
          and can’t be bothered getting my books out)glands were damaged and I have
          to take calcium supplements not SANDOCOL for the rest of my like as well
          as Thyroid hormone as now I am underactive.

          Hope this helps.


            Post count: 93172

            Hi Evandro,

            I was diagnosed for GD two month ago. I am on PTU which is another anti thyroid drug like the Ttapozole. The real name is Propylthiouracil. I am on 9*3 X 50 Mg per day for more then a month and only now I think it helps to reduce the T3, T4.
            My Endo said that he is going to put me on PTU for a year and if the GD will not go to remission – for RAI.

            The problem is that my eyes are going wors even now that the Hyper Thyroid sysmptomes are less sever.

            take care of your wife, she has a very tough time.


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